Feeling isolated

FormerMember
FormerMember
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I was diagnosed with breast cancer last year and had a lumpectomy and radiotherapy and in my head l had thought l had "sailed through it all" and was good to go - how wrong was that! In lockdown there is time to think and analyse, not always a good thing when you live alone and 2 and 2 make 96 (maths was never my strong point) .  

I am still suffering pain/side effects from the lumpectomy and medicine and having my check up and first mammogram cancelled out of hand hasn't helped as l had hoped to discuss all my options going forward including my other diagnosis of both osteoporosis and arthritis!!

  • Hi Nannydragon,

    just wanted to say hello and acknowledge what you’ve been through.

    lockdown definitely gives us too much time to think, but in a way, it’s better to feel all the emotions now and not years down the line....Yes we cope at the time, but it’s hard to know what emotions are going to be thrown up later.

    I’ve just had my 3rd follow up mammogram, which was delayed, but it looks as though most hospitals are now starting to catch up.

    It’s 3 years since my lumpectomy, chemo and radiotherapy and I can honestly say the shock has faded, life goes on, and I rarely think about it all now.

    hope you soon get your check up and are able to discuss all your issues.

    Dont feel alone, there’s loads of support on here

    Take care

  • Hi  I am with  in that time does help.  

    As has been said lockdown with time to think won't help, but lockdown on your own is most definitely the hardest.  I've been lucky that I've actually worked throughout as I am a lone worker in the office for a construction company, so was allowed to do so.  I have one day a week where I share the office with a colleague, so we took it in turns to take holiday on that day to ensure we didn't meet (as we couldn't be furloughed) which worked well  - but I must admit on that day, with my OH also being a builder, I struggled with a routine but  I did get through a lot of books on my kindle. Oh and ate loads more!!! 

    My anniversary date is 25th June and I actually got a letter through for my 3rd annual mammogram (diagnosed 2017) actually FOR the 25th June. I'm in Dorset and we have been lucky with the virus at my county hospital, but I would have thought it might be worth chasing your hospital to find out when your annual is.  Give your BC a ring and push for it (if you're UK of course) and see if she can push an appointment through for you.

    It wasn't until Christmas 2018 that I realised I hadn't had any pain in my breast after picking something up, so that's a year and 2 months since finishing radiotherapy.  I still find now if I lay on my breast at an awkward angle it feels painful. I'm hoping it's just scar tissue - I guess I'll find out in a couple of weeks eh ? Slight smile

    I hope you've had DEXA scan and have the Adcal +D3 at a minimum, but I would have thought you'd get alendronic acid too with osteoperosis.  I was osteopenic on my DEXA scan and don't have the alendronic.

    Kindest wishes,

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  • FormerMember
    FormerMember in reply to lesleyhelen

    Thank you Lesley and many thanks for your kind words.  I have been to the doctors today as l have some shortness of breath that the nurse thinks is a chest infection but she did check my breast and found a lump under the ribs near my radiotherapy tattoo and is organising an appointment at the hospital - to say l am in a spin would be an understatement but guess l must just wait for the appointment.

    I did have a Dexa scan and that's where they found the osteoporosis and l am due back there in another year but my doctor organised a full body bone scan as l have trouble with my hips and that's where the arthritis diagnosis was found. Have had no advice on that at all apart from "it's your age (66)" .  Well, off to try and ignore the chocolate and find something healthy for my lunch.  Thank you again , Lynn

  • HI

    Fingers crossed that she is just being over cautious. and it is just a result of the radiotherapy (perhaps damage to rib as they did warn that ribs could get broken during radio didn't they?) and where they directed the beams....  

    I do so hope so and I can totally understand juts how you are feeling now.

    Let us know the results pleas Lynn as will be thinking of you.

    Kindest wishes,

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