Tamoxifen

Hi, this is my first post! Yes, I started Tamoxifen in January and although I had heard about awful side effects I am pleased to tell you that it’s been absolutely fine. I take mine every evening before bed. I have been waking up a couple of times a bit too warm but not bathed in sweat or anything, The only other niggle is this month I have been getting some vaginal discharge which I need to ask the breast nurse about. But really nothing too bad. Hope that helps .

Hi I’ve been on it since nov 19 and all seems ok the only thing I’ve noticed is that my hair doesn’t get greasy  not sure if that’s a good thing or not

They do like to scare the shizzle out of you with all the ‘what could possibly happen ‘ info don’t they ? 

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Hi

I note that Tamoxifen is usually the drug of choice if you are pre-menopausal.  Is that the case for all 3?

How long have they said you will be on Tamoxifen?

D

Hi 

I’m 46 and pre menopausal and going to be taking it for 5 years . 
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Thanks, Alex

D

I was on it, and I did have hot flushes, mysterious discharge and was probably a bit more abrupt in some conversations, but none of the horror stories came true for me. Your body will adjust to it over time, I think I had a few months' settling in, but it's hard to tell as I started it when I started radiotherapy.

Thank you for your reply xxx I’m still undecided 

That’s brilliant thank you x 

Im

more thinking of the main side effects such as blood clots and uterine cancers as it says it raises these risks , that is why I am still looking at the box and havnt yet started taking them , a bit scared I guess x

I started Tamoxifen in February and have been fine. I can't really say I have felt any side effects....occasionally, I feel a bit of a warm flush but only ever for about a minute. I'm 48 and pre-menopause. There are side effects with all drugs, I suppose you have to consider the benefit it is giving you now outweighs the small risk of what could possibly happen in the future.

I am being offered the option of having the zoladex injections in order to suppress the ovaries producing oestrogen so I can then change to anastrazole. This is on hold for the moment due to the coronavirus as it means more appointments. However, I next meet with Onco on 3 July to discuss further. My quandry is, as I understand it anastrazole may give me a slightly higher benefit - maybe 1 or 2% - and I want to take the best option offered to me. However, the down sides are it means an injection every month, which could go on for a number of years. I might have more side effects if my body is forced into menopause before it is ready. Also, anastrazole might give me more side effects than Tamoxifen and now that I feel I can cope well with Tamoxifen, should I just stick with that. If it is a very effective drug, I am getting a good level of protection without a negative impact on my life.

I wonder do lots of ladies stick with Tamoxifen for the whole 5 or 10 years and have a good record of no recurrence?