Hi everyone. I am currently 38yrs old.
I had DCIS in 2013 and a double mastectomy with immediate reconstruction.
In 2016, I had stage 3, grade 3 invasive breast cancer which was in my lymph nodes. I had chemo and radio. I currently take daily exemestane, receive a monthly implant of Zoladex and a 6 monthly bone infusion of Zometa. I also had my silicone reconstruction removed as they were damaged with the radiotherapy.
Since Christmas 2019, I have woken every single morning with a frontal headache. It feels similar to sinus headache but I do not have any other sinus complaints. As soon as I get upright, the headache eases and within 5 minutes its gone. This is every day.
The GP communicated with my oncologist and I have a head CT tomorrow. I am worried.
Can anybody who is unfortunate enough to have brain mets, see any likeness to my morning headaches?
Thank you,
Ally.
Hello Ally,
I’m afraid I haven’t got any advice for you but I just wanted to say hi because you must be feeling really terrified. Hold on to the idea that it’s most likely to be something less awful causing your morning headaches. How long will you have to wait before you know for sure?
sending love and have everything crossed for you .
Mx
Hi purplewalk
I really don't know what to say. I am thinking of you and hope all goes well so please let me know how you get on.
BB
Xxx
Thank you BB and thank you M for your replies and kind wishes. CT scan is not until 4pm today and I am terrified. Thanks again. Ally x
Thank you everybody. Keep your fingered squeezed x
Hi ,
I just wanted to let you know that I can wake with a headache in the mornings too, and I also experience headaches where it feels like my head is being squeezed. Mine is due to increased intracranial pressure but was picked up by the opticians as my optic nerve looked funny.
i have a condition called idiopathic intracranial hypertension which mimics the symptoms of a brain tumour but when one isn’t there (it’s also sometimes known as pseudotumor cerebri). I had a clear MRI, but lumbar punctures showed high cerebral spinal fluid pressure. I’m on medication to control it.
Good luck with your appointment today x
Wow, I have never heard of this condition before. Thank you for highlighting it to me and I hope you manage to cope with it alright x
That’s ok, I hadn’t heard of it before this summer. I don’t get as many symptoms as some and the meds work well. Good luck x
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