Grade 3 tumour

Hi Cloverfield1

I've not experienced the situation you find yourself in with the her2 test but another lady who is on the site has. She had the diagnosis as negative but then it was double checked and now she is her 2 positive. 

As for the bone scan , I think this is normal when more than the sentinel nodes are positive. I had the same as you , 4 lymph nodes that was positive and had to have the ct and bone scan. And yes these scans and tests are terrifying and your  mind really goes to town on your anxiety levels. I researched bone cancer symptoms and was convinced I didnt have any.  Which I didnt and the scan came back clear.  I cried when I got the results out of pure relief. 

My bc nurse said it was all about crossing the t's and dotting the i's.  They was sure it was clear but just wanted to makesure. Before I started chemo. 

This is one hell of a rollercoaster of emotions. You tend to think every little pain or ache you have is something more. The what ifs are a nightmare. Easier said than done but try to take one day at a time. 

Take care 

Julie 

It seems to vary by area, but I had chest and body CT scans and the nuclear bone scan after only 1 sentinel (out of 2 was positive) and before anything else could happen. I then had level 3 clearance and nothing more was found. I was so scary waiting for the staging scan results, so hugs to you:) xx

I had ct scan and bone scan arranged by surgeon - my oncologist said that the DT scans are now really good and he wasn’t sure why the surgeon wanted a bone scan as well. Both were clear and I can honestly say I don’t think I have ever cried as much....after weeks of stress, the unknown and fear...

Take care

Thanks so much your reply...yes its really worrying I thought I was done with the test & was going to just receive the dreaded treatment plan...but looks like I'll have to endure another week of hell xx