Lobular breast cancer

FormerMember
FormerMember
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Hi all, 

Im new here and have been diagnosed with libular breast cancer, stage 2 grade 2. Im a bit scared. Does anyone else on here have this? I have a single mastectomy booked for 3 weeks time and then they will decidde what to do next.

Any advice would be much appreciated. Im 63 and still working, on annual leave at the moment. 

Thanks, Ali

  • welcome! I have also have grade 2 lobular.  Had my mastectomy surgery on 4th December after 6 months neo chemo.  I worked through my chemo & did not finish work until my surgery.  I have healed well, my movement is brilliant despite a L1 node clearance.  I am back in on the 29th for full ANC as 2/9 nodes tested has cells, I was offered clearance or extra radio.  

    I am hoping to return to work at beginning April, March I will be on A/L. The time has flown by, I had a horrid start (read my profile) but have been treated since with nothing but compassion, professionalism and unbelievable expertise.

    Deb xx 

  • FormerMember
    FormerMember

    Hi

    You could have a browse through the 'Surgery Chat' discussion here (link) in the breast group and could also post any questions you may have as a reply there - someone will soon get back to you.

    Take care, G n' J

  • Hi Alipud

    I had grade 2 1.6mm Lobular Breast Cancer and had my a mastectomy on 9th October. I am 49 and my story is in the about me section.  I recovered well from surgery.  I finished work the day before my surgery and I was off work 7 weeks, I returned to work on a phased return for 8 weeks .The emotional recovery (not from the surgery from the diagnose is taking longer.

    If you have any questions feel free to message me.  Take care x

  • FormerMember
    FormerMember

    Hi Ali, I have grade 2 lobular and had a mascetomy on the 20th Dec and had all clear from sentinel node biospy meaning that I don't have to have radiotherapy or chemotherapy but am straight onto tamoxifen which I'm not looking forward to. My range of movement is good but I ve been doing my exercises religiously. I have concerns about returning to work as still feeling very whacked out by everything and feeling fatigued and fluy from tamoxifen so far. Mascetomy are do able but I think it is important to be so gentle on yourself and give yourself time to heal well physically and emotionally. 

    Best wishes 

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Ladymel, 

    That gives me hope that i wont need chemo too. Dont rush back to work, take your time. We only get one life xx

  • FormerMember
    FormerMember in reply to daisyjake

    Thanks Deb, 

    Wow you worked through chemo! Not sure i would do that but keeping your momentum is important i know. Good luck with healing and thanks for taking the time to reply

    Ali xx

  • FormerMember
    FormerMember in reply to Roses123

    Thanks Roses 123 you are all giving me hope of a fast recovery. I thought i would be unwell for ages. Hopefully better for summertime xxp

  • Hi.  I had Lobular Cancer grade 2 Her2negative, 44mm tumour, had Lumpectomy and it was n 1 lymph node so had full clearence didn’t have chemo but 15 Radiotheraphy and 5 boosts, this was 3years ago this May actually near my birthday when diagnosed Cry But now after all that time I am ok but do have my bad day’s I am 75 in May a lot older than some of the ladies on here, you will be ok this forum is very helpful. Good Luck .

  • Hi Ali 

    I too had lobular stage grade cancer back in 2013 at age 48.I had surgery with diep reconstruction and spent 2 weeks in hospital due to unforseen circumstances but was back at work by week 8 full time and was fine. On tamoxifen for 10 years and nearly 7 years all clear. 

    Take care 

    Morna 

  • FormerMember
    FormerMember in reply to Toony

    Wow thanks Morna,

    Ive had surgery now and stayed in one night only. I go back tomorrow to have my drain checked and hopefully the dressing off. I'm feeling a bit sorry for myself today, hopefully I can shake it off tomorrow.