Struggled at the moment...

FormerMember
FormerMember
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Hi All, 

Not been on here much over the last few weeks. 
Been very busy with Christmas prep and it’s my youngest birthday this Sunday, so feel a bit like a headless chicken at the moment.

Ive done all the shopping, wrapping, writing cards, Christmas decorations etc with hardly any help as hubby has been working 7 days a week bless him. He has tried to help but I feel awful as he’s out at 5am and not back till gone 6pm. Someone did actually say to him shouldn’t I be better by now as I finished chemo 7 months ago and radiotherapy 6 months ago. I’m very glad for the help and support I received after diagnosis and during my treatment, but now it’s a bit like I should be over it.

It took me 2 hrs just to get the garland on my banister on the stairs, i then sat down on the stairs and just burst into tears!
My mum has been ill over the last few weeks so I’ve been going shopping with her, helping her out etc. Last Monday I went to the hospital with her, saw her consultant, he asked her to get a blood test which she did, on Wednesday her dr rang her and asked her to go to see him so I went with her,he explained her wbc (white blood count) was very high, normal range is 4,000 to 11,000 hers was 26,000 so told her he wanted her to go to hospital and take a bag as she would probably be staying in, I took her and we spent 9 and a half hrs in A&E which was pretty good as some people have been there since the night before.

Anyway she is still in hospital she had IV antibiotics but they weren’t working but she’s on strong antibiotics tablets now, she’s having a blood test again today so hopefully her wbc will have gone down 

Im trying to stay as positive as I can, feel so tired, drained actually, I’ve being getting things ready for the party on Saturday, stripping beds washing, cleaning etc, goin to mums house to check on house, home for lunch then I go out at 1pm to visit her, home about 5,  make a meal and then go bk at night, my son went the other day as I had to get mum some things, order my daughters party food, balloons, pick up my prescription, do some shopping for myself, I still need to drop presents off. Thankfully my hubby is finishing for Christmas today, as my daughters are in rehearsals for an Aerial Hoop and silks show they are in but I’ll be at the hospital. I feel like a need to split myself in two, really struggling physically, my body is aching, I’m not sleeping more than 2 hrs at the time.

Thanks for reading the essay, it feels good just to get it off my chest x x

  • Hi Beachwalker,

    I know how you feel. I finished radiotherapy in May and I’ve got two herceptin appointments left. Almost as soon as I finished radiotherapy, I couldn’t speak to some family members and friends without them asking when I was going back to work. They never used to be all that interested about my career! 

    Essentially, I’ve really taken to heart what Dr Harvey said about taking time to recuperate properly and it’s something that’s very personal and it takes time. I do have the luxury of being able to recover at my own pace and I feel for people that haven’t.

    It sounds like you’ve got an awful lot to manage at the moment, but please do prioritise your health and your mum’s health and try to cut out the things that aren’t essential.

    I’m really enjoying yoga - helps with the stiffness from exemestane and gives me time to relax. Have you managed to find something to help you to relax?

    Take care,

    Sarah x

  • And breathe.  Stop visiting your mother twice a day .  She’s in good hands .  My hubby was in hospital for 3 months and I was working full time and visiting after work every night and all weekend.  He had afternoon visitors as most friends/family retired.  My daughter went every Friday evening to give me time off but I was fried as I was in work at 7.30 then hospital 5-8 homeI did this for two months until they moved him over an hours drive away when I only went every other day.  

    I had to go daily for first two months as he was flat in his back 24/7 and had to eat like that.  While there were health care staff available to watch him eat breakfast and lunch none for teatime and he scared me by choking once and he had to be rolled by 3 members of staff as he was not allowed to sit up!  

    I became ill after they discharged him and took me months to get back to normal .  

    Hope party goes well xx

  • , sorry your feeling low and overwhelmed.  This is a great place to vent! You have been a great support to me over the past few months, hope things get better for you and your Mum is on the mend soon.

    it's such a busy time of year even if your at 100% health and you sound like you've got more going on than most. Hopefully now hubby is off you can delegate a few jobs. Make sure to take time for you and just have a rest. 

    Take care xxxxx

  • FormerMember
    FormerMember in reply to Sarah1111

    Thank you for your messages

    I was just having a really bad day.

    I have reiki and reflexology but haven’t had time to go and closed now for Christmas, I find just lying in the bath relaxes me and I was just doing breathing exercises last night.

    Friend's did go one afternoon and my son the other day so I haven’t been going twice a day al the time I didn’t go last night and I’m out tonight with my youngest to an Ice Show so looking forward to that and I, looking forward to the party too.

    I am feeling better today, thank you for your kind words I am very glad I could support you recently. I hope you are doing ok? How is chemo going? I hope side effects are being kind to you x x 

    Tina x x

  • Hi Tina,glad your feeling a bit better. On day 15 of 1st cycle and had rough first 4 days but then not too bad at all touch wood.  Scalp feeling really itchy though, not a good sign but wig and scarfs are ready xxx

  • FormerMember
    FormerMember

    I am Feeling Low too maybe age is a factor for me..

    I am 73 years old and I was diagnosed in April with Grade 3  HER2 Pos and ER Pos breast cancer I had no symptoms that I knew of it was found on my last ever mammogram to say I was shocked is an under statement, I had a lumpectomy and 15 rounds of radiotherapy and 1 year of Herceptin it has not been a walk in the park more like a tumble in bramble bushes

    when I had my surgery they found another cancer starting in the duct so they took that aswell as a clear margin

    I hate taking the Letrozole I went through the menopause 30 years ago now I am going through it again hot flushes night sweats  mood swings its horrible. Now I have developed Lympedema OH THE JOYS..

    I find myself in a dark place at times seeing no light at the end of the tunnel but I will keep positive and keep fighting

    I just wish I had some energy so that I could at least function but I relish the days when I feel somewhat normal ( whatever that is )

    love and hugs to all going through this journey and Merry Christmas to you all xx

    Shirley

  • FormerMember
    FormerMember in reply to FormerMember

    Sounds like you are going through a rough time, who knows if age plays a part? Am feeling low too, no spring chicken myself at 65 and am enjoying the side effects of docetaxel and filgrastim currently. I am wondering if I will relive the menopause too when I start the medication after Christmas. I don't know how much it helps to know you are not alone. Somehow Christmas makes it worse, being expected to put on a positive face for family and friends is not easy. Hang on in there Shirley and I hope you have a bit more energy and days when you can enjoy life a bit more as time goes on.

    Hugs to all

    Sylvia

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Sylvia

    Thank you for your reply and I agree trying to put on a happy face is almost impossible at times although I do try only my husband sees me at my worst. but I still have my boxing gloved on ready to fight.

    I hope you have a Peaceful ..side affect free Christmas and a Wonderful New Year and hope its a better 2020  for us all

    hugs

    Shirley

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    and

    I hope you both had a Good Christmas, as much as you possibly could.

    My mum was discharged on Christmas Eve, which was good, however her symptoms aren’t much better, she has diverticulitis and an abscess, operation has been deemed too dangerous so there isn’t much they can do apart from give her more antibiotics, which they did when we had to go back to the hospital on New Years Eve, at least she was allowed home this time.

    Tina x

  • FormerMember
    FormerMember in reply to FormerMember

    Awwww Bless you Tina

    You seem to have a really bad time, I do hope your Mum is feeling a little better

    You must take time for yourself and recharge your batteries which isn't easy when you have other people to look after.

    This journey we are on is not an easy one but stay positive.

    I wish you and your Mum the very best of Health for 2020

    sending you a hug

    Shirley