Just diagnosed

FormerMember
FormerMember
  • 8 replies
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Hello,

I was diagnosed with breast cancer on Friday. I didn't have a lump but just sensed something not right. I have 3 areas of lobular cancer in one breast. I am 43 and it is hormone reactive. They are going to remove the breast within the next 3 weeks. Initially it looks as though it might not be in lymph nodes, consultant is having a meeting with oncologist about whether to offer radiotherapy or just tablets to stop estrogen. 

I knew that it was cancer as the consultant at initial meeting seemed quite concerned and they took 3 biopsies and organised MRI very quickly. I was as high as a kite with relief on Friday as that waiting period is so awful and I really thought the worst! When they said my breast could be removed and perhaps just have tablets I thought well it's the best bad news it could be. My husband is very upset and thought I was acting very strangely!! I've come down to earth with a but of a bump now. What a rollercoaster of emotions! Now I'm worried about next meeting

We have 3 young children who are my main priority.

  • FormerMember
    FormerMember

    Hi Cloggs…....I am 43 years old too and I have lobular breast cancer too! I am ER and HER2 positive. I had my mastectomy 3 weeks ago along with a DIEP reconstruction and all my lymph nodes removed under my arm on my right hand side. My treatment plan is sorted for the next year but that could change......things tend to at this early stage.

    My son is 12 years old and my husband is coping by being super organised......he is my rock.

    If you have any questions I might be able to help with regarding your mastectomy operation please feel free to ask me...….everyones experiences and attitudes are different but I find sometimes the act of just typing the question helps my mind become clearer.

    Much strength to you...….Debbie x

  • FormerMember
    FormerMember

    Hi Cloggs,

    I just got diagnosed last week too and waiting to see the team this coming friday and should go into hospital for my mastectony and reconstruction the week after hopefully. The thought of waiting till after christmas doesn't settle me at all but hopefully this won't happen as they told me it would need to be within 2 to 3 weeks as it was throughout the while breast. They hope it's not in lymph nodes too but are taking samples during the op. 

    The fact that it's cancer still seems separate for me. No emotions whatsoever, but seems to be with people around me. I have 3 children, but they're a bit older and managing it well as their view is based on mine at the moment. I think it would be worse for them if I crumbled but not sure if thats healthy really.

    I hope all goes well and smoothly as can be for you. Seems like we're in a similar boat. 

    Sam x

  • FormerMember
    FormerMember

    Hi Cloggs

    i’m 43 too with 3 kids 

    I was diagnosed with 2.5cm lump in breast as well as lymph nodes just 4 weeks ago I have been booked in for all treatments chemo op radiotherapy and oestrogen blockers and just had my first of 6 chemos last Thursday 

    I have found that although my kids are older 23 21 and 16 they feed off your emotions so by being positive around them might help. Mine have decided that I’m ok as long as they ply me with cups of tea!!

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Debbie, your reply means a lot.

    I'm sorry we are in this situation but it is a comfort to hear from someone in the same/similar boat. You sound very brave and I hope everything goes well for you.

    I will know more on Thursday after my next meeting. 

    Thank you again and prob speak again soon.

    Best wishes Claire x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Debbie, your reply means a lot.

    I'm sorry we are in this situation but it is a comfort to hear from someone in the same/similar boat. You sound very brave and I hope everything goes well for you.

    I will know more on Thursday after my next meeting. 

    Thank you again and prob speak again soon.

    Best wishes Claire x

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Sam

    Thank you so much for your reply. It means a lot.

    It's a comfort to speak to others isn't it? I don't want to tell too many people as I don't want lots of sympathy and sadness as actually I'm planning on this being a minor blip I will soon be over .

    All the very best to you

    Claire x

  • FormerMember
    FormerMember in reply to FormerMember

    There isn't much a cup of tea can't fix to be honest so glad they've got that covered!

    Thank you very much for your reply. It sounds like you have an excellent plan in place and I wish you all the very best.

    My nurse told my husband that the blockers will bring on my menopause early and to get himself a crash helmet Joy. I loved that little joke at such a horrid time.

    Best wishes

    Claire x

  • Ladies be kind to yourself and don’t feel you always have to put a brave face on it.  

    My history is on my profile - click on my name.  

    As you have already found you will get great support on this forum from others who truly understand the stress, tears etc. This is a great site to vent or ask the questions you may not want to ask in person initially xx