Hi everyone this is my first post. I was diagnosed after a call back from a routine mammogram, quite a shock as lump couldn't be felt even by doc. Got surgery results yesterday, consultant said " it's as good as it can get" nothing in lymph nodes , clear margins, grade 2 and tumour was 9mm in size.im so thankful for that and for the care I've had I'll be having radiotherapy after Christmas and have started letrozol yesterday for 5 years. I know it's looking a way ahead and I'm over thinking, just wondering is there a high risk of it returning when you stop taking the letrozole? There won't be anything suppressing the oestrogen then.? Sorry if this sounds as if I'm looking so far ahead but these past few weeks my mind's been in overdrive thinking all sorts
Thanks for listening everyone
Hi
It's an interesting point as I've always thought that too! I'm halfway through taking my tablets (Anastrozole for me). I was Gd 2, 15mm, no lymph nodes (+ 54mm of DCIS), So, you and I are early stages.
From what I've read, that they reduce our oestrogen during the years we take them and then don't have much effect thereafter. Although, some ladies can be on them longer, so who knows!
It has always struck me as odd that we get annual checks for the 5 years whilst taking the tablets and then when we stop taking them, go to every 3 years as normal mammogram checks. There must be science behind this and the fact that after 5 years of taking them they must have done their job and we are then at the same risk of it coming back as everyone else.
You can use this tool to see the NHS results of our life expectancy based on treatment.
Try not to worry about all this now, just concentrate on the next stage of your plan (ie. radio) and have a lovely Christmas in the meantime.
Kindest wishes,
