Just fed up of feeling rough

Hi ,

I had the same medication on my first round on FEC although only 5 days of injections and felt very similar for the first five or 6 days. Things started to turn around after that and feeling much brighter now (day11). Try to be gentle with yourself. Sleep and drink plenty if you can. I watched most of the new series of the Crown!!! I was told to have my injections before I went to bed so that I would sleep through some of the side effects. 

Hope you are feeling brighter soon. Xx

.......You cannot help feeling so sick and unwell if that's the way your body is reacting to these drugs. Some people hardly react at all, some follow a similar pattern every cycle, others feel progressively worse each time and some , like you, just react ........It probably won't  matter what anti emetics you take, you will probably continue to feel sick or actually vomit. It is not your fault.... .but you might need to mentally prepare yourself for more of the same next time too. And if you are feeling like this .....then inevitably you are going to feel down and no one on this thread is going to suggest it's  self pity........I'm sorry I can't offer you a magic cure. The only thing that stopped me vomiting was an injection and twice with the T I had an infusion at the hospital before coming home because although not so common even the T made me sick. I'm afraid I just stayed in bed for several days. I tried not to move because movement made me vomit more and I slept. 

As for the injections.....if you are in a lot of pain from them it might be a good idea to mention it. I appreciate they are for your white cells. I had them too.....but my chemo was still postponed twice because of the low count. I can't remember pain but that was maybe because my lasting memory is of physical sickness. As you know it's a vicious circle.....you can't eat or drink because you're sick so you get weaker and more dehydrated and you feel more sick. My husband put glucose in warm ginger for me to sip and once I could take sips, it did help. The fact is in the end after increasingly more days......I did start to improve and I didn't actually do anything. My body corrected itself. I think the most important thing is to do what you feel you can....I set myself small challenges for my self esteem. Just small things.....wash.....next day shower and change pj's.....next day get up for an hour or so.....next day shower and dress. As you can see it was slow progress for me but I never once felt guilty.This is what the drug did to me. And at the same time it has kept the cancer away for four years so far. 

That is the point......it will pass. It may be extremely unpleasant but every day is one towards an end and will get there  yanyan, I can promise you that.

Hopefully you will get to sleep now. Sleep is certainly one of the best cures for all the side effects.

Take care. Love Karen

Hi , I really suffered with the injections the first time round! Felt like I was on another planet, my bones felt so heavy and pulsed . I hated them so much I dreaded the second round. The oncology pharmact recommended that I injected them in the evening , which helped but I’d also read about taking the antihistamine Loratidine with them which was an absolute game changer !! I felt so much better. Aprently when it boosts your immune system you produce histamine which can make you feel bad. It’s worth a try and the oncology pharmacist said it was ok to take  xx

Also the steroids make you feel shaky and can make you feel down and weepy afterwards. I tend to feel loads better 2 days after taking the steroids which is such a relief. They cut my dose down by half as I hated the steroid effect on my brain so much. I try not to think too hard or analyse anything too much until the steroid fog lifts. I really hope you feel better soon xxxxxxx

Thanks for your replies. I woke up this morning feeling about 2% better. I’ve not moved much all day. Still managed to drink .. eaten a bit. But tonight .. the thoughts of injecting .. I just decided to phone the help line. So I’m injecting before I sleep and putting up the evenings anti sickness by double and hopefully that will help. If not I need to get in touch tomorrow. It’s so wearing .. been at the end of my tether. Praying for a better night x