I'm new! Got breast cancer

That’s not good x  where is the confusion x

Hello, 

It feels frightening and daunting. When I was diagnosed although I suspected it could breast cancer it was a BIG shock. I feel for you. Also while the health professionals are there to help etc it is easy to feel one's life has been taken over, doesn't it? 

Have you got a breast care nurse? I have found it helpful to phone and talk my concerns through. If you have conflicting reports from the oncology team-it could be a good idea to ask for things to be made clearer and for an opportunity to ask questions and share your concerns. 

Also on MacMillan telephone help lines it is possible to chat with a MacMillan  nurse. I have done this and it helped me. 

Bosombud 

Thank you xxx

I was told they had got all the tumour -and was waiting to heal then start radiotherapy and hormone treatment.... 6 weeks later im told they couldn't get it all - its still there... it was triple the size I was originally told and I cant start RT yet due to not healing as well as expected... each time I go to see my oncologist - I am floored by new unexpected news xx

Hi Catz777,

Sorry you find yourself her but it is so supportive, I didn't find this site until months after my operation and felt so alone, it has been invaluable to me. 

My tumour was 2.9CM on the scan and 4.5CM when I had my operation, apparently depending on where the tumour is it can be difficult to get an accurate size. Also told clear nodes and then 2 were positive. I didn't have a clear inferior margin either which panicked me, I was told the Radiotherapy should mop up any cells left behind.  There was no more breast tissue to take as I'd had a mastectomy. 

It is depressing when you go back to see the Team and there is more bad news. I thought why me, then when I found this site I realised lots more ladies have larger tumours than first thought and positive nodes.

I'm a year on now and it's been so difficult, I've been mega stressed at times and struggled to cope.

Wishing you all the best.

I think the professionals forget as patients this is usually our first encounter with tests and diagnoses etc unlike them  a little more understanding of people’s fears would help xx

Hello can i first welcome you to the community none of us wanted to be a member of but under the circumstances its the best place to be. You will find people who get you because they are either going through the same as you or have been through the same as you. Hopefully you'll not feel so alone.

Sorry they told you it had all gone when it hadn't, i had a couple of similar things happen to me and coped really well until it all became so unpredictable. I often wonder why they tell us things unless they are 100%. I was told i had no cancer showing on my MRI then went on to have a lumpectomy and not get clear margins. I would have rather they hadn't told me the MRI results until they were sure. So i have an idea of how you are feeling. Do you have a breast care nurse? have you thought if speaking to her? i know whenever i was unsure about anything they helped to put my mind at rest. 

I'm tagging as she had issues with healing too, i'm sure she'll be along to give you some reassurance. 

Keep coming and talking to us, you aren't alone, were all here to help you through.