Lymphadema sleeves

FormerMember
FormerMember
  • 3 replies
  • 272 subscribers
  • 1226 views

Hi all

I know I keep harking back to the good old days!!! Sorry about that. But first time round I had all the lymph nodes removed. This resulted in lymphedema. 

I hated the NHS sleeves. They were ugly. I went on an American website and found amazing sleeves. They were expensive £ 100 a go including postage. But I got ones in black lace beautiful flowers and tattoo designs. Eventually there was a UK stockists.

My body sorted itself out, I learnt what not to do, so I no longer wear sleeves. 

My second time around I'm hoping I don't need them but if I do I'll search again for black lace.

  • FormerMember
    FormerMember

    That's good to know.  I've had full clearance - 6 months ago now and 4 weeks post RT and OK so far.  Due to serious cancer induced mobility issues I have to use my arms to weight bear to get around so sm worried.   But I have no choice - but ok so far and long may it continue.  Got enough to deal with ...  but if I need one I'll certainly search

  • If you need one you will need to be measured properly, you can’t just buy over the counter. There are different levels of compression and different sizes, and it needs to be assessed by a lymphoedema nurse to find the right size and fit for you.

    I’m not particularly fond of my sleeves, but have got used to them now. You are very lucky to not have to wear them now. I’ve been told I need to wear them for life. My lympoedema is well managed and my bad arm has reduced significantly in size, but I also have it in my chest and I  can have a series of lymphatic drainage massages every 6 months, if I feel I need it, on the NHS.

    I’ve seen the lovely US compression sleeves and would love to have some, but I feel the cost is too much, as my sleeves are renewed every 6 months. Somewhere, ages ago I saw some pretty “sleeves” which are not compression sleeves at all but covers that you can wear over your lymphoedema sleeves. Can’t remember where I saw them though. Will have to search again.

  • FormerMember
    FormerMember in reply to kateandbiz

    Hi

    The sleeves from US gave clear instructions on measuring and compression was linked to prescription from NHS.They were expensive but family were happy for me to have Cash for Christmas ,birthdays etc which paid for the sleeves. I worked full time too, so I was happy to pay. It made something not so pleasant more so.

    At the time the market was expanding but now I suspect it is reducing as the automatic removal of all lymph nodes is not common.Thank goodness.

    The sleeve covers were just coming in but I never tried those.

    Fingers crossed the other arm isn't a problem this time round.

    Has the NHS at least got round to different skin tones yet?