ER/PR+ Her2+ Mucinous Diagnosis

Hi

So sorry that you've come aboard this very unfriendly and very scary roller coaster but hopefully you'll find help, support and some comfort from this community.

One piece of advice I took on board when I was preparing for surgery was to tackle one stage at a time, I was asking all sorts of questions for stuff further down my road and my BCN said stop, take small baby steps and concentrate on each issue in turn.  Unfortunately this is a long road.

I did Google things at first, and in all honesty scared myself silly, so I then made a pact with my other half that I wouldn't Google anything except to research what we'd already been told we would be dealing with and always together.  The problem is everyone is different and, although we are dealing with Cancer, each of our journeys through this will be unique.

I hope that everything goes well for you XOXO

Thanks for your reply .

I am trying to do just as you said I not run ahead with things. This is when my head starts to go. It's such an emotional journey.  One minute I'm feeling strong and can handle anything the next I'm filling up thinking the worst.

I'm hoping I'll feel better after my oncologist appointment next week. All my results from the scans will be in and we'll have a treatment plan. 

Hi Elsie77,

It's not the best situation to be in but you have the strength deep down to get through it, I felt overtime (my journey is only 5wks since diagnosis) and with all the appointments it gets easier to manage, you realise how many people this effects and seeing every one at different stages of their journey in the waiting areas with you. Every one is so lovely and the chemo unit is quite a cheerful place I've found, none of us want to be there but everyone chatting.

I was diagnosed both hormones positive and Her2+ so I'm having the new combo of herceptin and perjeta antibodies and doxetaxel and carboplatin chemo, finished my 1st treatment yesterday and wasn't bad at all, even found the cold cap absolutely fine. Kept asking the nurse to check it was on and working properly.

The amount of info and appointments is overwhelming and if you haven't already I suggest you get a diary to record everything including how you feel each day during treatment.

I'm at the very start to of my journey and found the ladies on here are amazing sharing their journeys and advice, it's a great forum.  Be good to stay in touch as we're similar diagnosis and age (I'm 39) 

Sending lots of hugs

:-) x 

Thanks for your reply, it sounds like I'm not too far behind you and we have a similar diagnosis. Thanks for the reassurance. All the posts on here seem to be really positive and boost me up :) x

Hi just wanted to drop by to let you know I had my first appointment with the consultant today to go over my treatment plan. Thankfully my scans were clear and it hasn't spread. I felt so sick waiting for the news it was such a relief when he told me!

Imy plan is FEC-T / TPT for 6 cycles, then surgery (hopefully lumpectomy if the chemo does its job) then radiotherapy. 

I've been trying to keep up to date with your posts on here, they've been super helpful. 

Feeling positive

That's great news your scans are clear and you have your plan of action.

Hope all goes well and stay positive, it's the key to success

X

Morning Elsie77,

Totally know that sick feeling waiting for results and the wonderful relief when reality isn’t the same as our crazy thoughts!

rejoicing with you that it hasn’t spread. As already mentioned, onwards one day at a time. This journey is a challenge, but doable and this community family are great supporters in every way I’ve found.

 X