Terrified moved to brain

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Hi, I was diagnosed just over a week ago, 5.5cm & lymph positive, CT clear.  Cut a long story short have already transferred my care to another hospital already as have been offered neoadjuvant to shrink prior rather than straight to maestectomy plus entering trial.  Second opinion said first had painted lymph as very bad but on analysis of my scans said lymph minor.  

I have an on off throb in upper arm & on off tingling fingers, not enough to stop life & be dropping stuff but enough to notice (mobile devices make it worse), last two days headache later in day (not on waking), nothing migraine like, more peri meno like but I am terrified this is a move to brain. 

Am with my Prof oncology tomorrow and am so so scared.  My anxiety is off the scale, I am climbing the walls at night & can’t function.  

So, so, frightened. 

  • Hi , WELCOME to the group. I'm sorry you find yourself here but I promise you it's the best place to be, for advice, support and virtual hugs!

    Now it's time to take a slow deep breath and remind yourself that the CT was clear and that people get headaches for many different reasons and Cancer mets is way down that list!

    You are feeling anxious and probably not sleeping both of which can cause headaches. It's such a tough time Hun but try not to let your thoughts run wild. 

    Take things one day at a time. If that's too much then go hour by hour! Try and fill your day with activities that you enjoy. Treat yourself. Even if it's just coffee and cake with a friend. Enjoy it while you can, your taste buds go AWOL while you are on chemo!

    Sorry to hear you have had to change hospitals, that won't of helped with the anxiety. But try to trust your new team. They are there to help you through this. Ask as many questions as you need to. I always go in with a list as I find my mind goes blank the minute I walk in!

    You will feel more relaxed once your treatment plan is explained and started. Until then there are loads of lovely ladies and gents on here to help you every step of the way. So take things slowly Hun and try to relax. Worrying won't change anything! Although I know its hard not to!

    Sending you a ((((((((gentle welcome hug))))))

    Sal xxxxx

  • Hi Sal, thanks so much I really appreciate your response Slight smile

    I was so bad last night I ended up taking diazepam.  If I am correct my CT only covered thorax, abdomen and pelvis with contrast so feel sure anything in my brain was not covered.

    When I transferred I felt so positive about the move, as did my support, I know I need to be positive but this is so very tough Frowning2

  • Hi , no you don't need to be positive. You have been told you have breast cancer and that's CRAP!! So if you want a negative day you have one! But you will also have days when you wake up feeling more in control. Those are the days you try and get on with things and put Cancer on the back burner, so to speak! Yes you have cancer but the oncologist and surgeon will deal with that. You just concentrate on looking after your mental health! You need to find nice things to fill a few hours! Give yourself permission to have cancer free time!

    Your headaches are highly likely to be just that, headaches! However if it's really concerning you then speak to your oncologist when you see them! But if you sat down and think about it, do the headaches get worse/appear when you are thinking/worrying about breast cancer!!!

    Sending you (((((((HUGS)))))) YOU CAN DO THIS HUN!! xxxx