Oh my goodness!!! I can’t see any4 letter words up in that list so will add one ****.
Ok so I need some clarification to understand this fully.
So the 2mm etc, is it that what they told you your original tumour size was, 2mm. Is it now 24mm????
Losing the plot is more than acceptable in my book.
I want to say how dare he state ‘how lucky you are it’s not 20 years ago’ I would have had my hands around his throat and it would have taken more than 1 person to pull me off. There’s no f****** luck about getting this ever!!!!! He needs retraining on a big scale, just so insensitive that it beggars belief.
What were you 2 days over, the option to have a mastectomy????
Honestly my problem has sunk into insignificance after reading this, you going back in again on Friday is just making me sob uncontrollably, I just wish I could be of more help than just writing to you.
Email notifications are still not working for me, I’m not sure if the others are getting them either. I’m sure you will have plenty of messages once they get on here.
Just don’t know what else to say, sending you love anda humongous hug xxxxxxxxxxxx
Just saw your mention of our email notifications and thought I'd chip in - they are still down but we have reported it and are working on fixing it! We hope to have them back up and running ASAP.
Oh Leo sounds like you are facing plenty my love. 3 lots of surgery is just bloody awful and can imagine your frustration. Its all so draining isnt it hanging around waiting to be seen, being given not so great news and then faffing with pre-op. Make sure you take it very very easy after Friday...lots of tlc and rest. And get all those questions written down for the big gun.
Jackie sorry you are having a bad day. It is totally understandable and I remember Ali having hard time when her date came through. Your head must be spinning and there isnt much I can say to help you right now other than you will handle it and handle it well once the upset wears off a little. No one in the universe wouldnt feel apprehensive and scared. But like you said yourself last week dont read too much about it, listen to what nurse has to say, do what you have to do to prepare but then just (and i dont mean just like its easy) turn up on 18th and see what it brings for you. I keep thinking about my BCN saying she cant get hold of half her ladies on chemo as they are usually out. Your on-line support crew are with you every step lovely lady.
First day without hubby and Libby for 2 weeks so bit lost today but a friend stopped by for lunch which broke up the day nicely. Asked District Nurse to come and check wounds tomorrow as dressing has come off and the drain one looks a little red around edges. She thinks it sounds ok and said fine to leave dressing off but will check it tmrw in case infected. So can now see the incision wound, pretty big and quite high up towards arm pit....sleevless tops may be a thing of the past now (my arms are fat and ugly anyway so people are best spared that sight!).
Libby was bit upset about school but childminder said she was fine once with her buddies. Brownies tonight and she gets to take birthday cupcakes so she is excited. Still hoping I can continue helping at Brownies as much as poss throughout treatment.
Take care everyone and extra love to Jackie and Leo. Jolly hope you get a decent sleep and everything goes well tomorrow xxx
That was one rude word young lady. It will be soap mouthwash for you.
1. Weeks ago I was told the tumour was 20mm. Then a letter said 2mm. Now today 24mm. I am going to buy them a new ruler
2. The two days was over on my pre op assessment. Had one done in November for the first op. Had to do all the same again. 1 hr wait. Then bloods add another hour
I am going to speak with the Head Boy on Friday and mention the guy from today. I mean really. Yeah mate and you might not have been a doc 20-30 years ago.
Also I want Head Boy to explain the whole Histology process. And why 5 days before they know it hasn't worked.
Jacks don't get upset for me, but that's lovely you are so kind. You keep in a positive frame of mind for the coming weeks of CT.
Ewww that was a loverly hug.
The lost was half of my post disappeared. Oh and no notifications here either
A plus was my cancer is mine and my girls wont get a share of it. But Herceptin will be my meds by the look.
Oh my gosh LeoLady. There's just not words for this. I had to have 2 operations and that was waaaay more than enough. As it turned out the 2nd one was really unnecessary as there was no sign of any cancer cells in the tissue. The margins were actually clear the first time around, but were right on the edge. If they'd come back and said, "Nope, still not clear", I'd have done the same thing you did and tell them to take it off. Did they explain why they wouldn't do that? You're pretty darn amazing to even have rational thoughts right now. I'd be in a padded cell strumming a Ukulele with my toes. Just wanted to let you know that you're in my thoughts and prayers. Hugs and sending strength. Mira
Wow busy evening/day, see I don't rely on notifications I just keep popping in to see if my crazy, mad, loveable, sanity saving, and virtual friends have posted anything or not as I know someone will at some point.
Loads to catch up on, but main for today is Leo, what a pile of *&&^£&^£%!!£!"&"*£^&**&"£(* so peed off for you. 3 ops in such a short space of time is ridiculous, obviously they need Ian all out,he really is a stubborn old so and so......sling your hook Ian, Leo does not want you any longer!
Makes you wonder why they've not managed clear margins yet, no wonder you asked about a MX, and as to the guy you saw today, maybe boy is more appropriate? hurrah for 20-30 years ago, doesn't matter whether then or now, should be able to get Ian's big bum out of there with clear margins and firmly kick him into touch once and for all.
As for the 3 days past pre op cut off, really I do wonder about lack of common sense sometimes these days, would 3 days make a huge amount of difference? Fair enough retake bloods, but doubt the rest of your vital stats have changed much, other than a smaller bust ;-)
Hugs to everyone else, Jacks especially as established from the posting that you got your date through and it's all hitting home somewhat.
Survived 1st day back at work after xmas break. Late start for me tomorrow, not been too bad, but the old brain cells are starting that familiar journey of thoughts of what will happen tomorrow when see oncologist, although I kind of know it's to 'discuss the benefits of RT' which I now know is because Lenny was a big old B***er and like Ian bits of him may well be lurking since I got rid of him and his invasion as couldn't get clear enough margins. I may I guess be able to get a proper breakdown of my path report, but form to request copy of it for me to read at my leisure was sent off today, I may get to see it sometime in the next 40 days or so if I'm lucky.
Guess mind is more on overdrive now I know more about my family history, it certain puts a whole new perspective on things, that needs mentioning tomorrow too, in case it makes them decide to look at me more closely or in a different way.
YS tennis has been cancelled due to frost so no 4 hr trip out for me tonight, been wondering how to fulfil my time instead, I may well just go and have a bath seeing as I got a load of bath bombs (or should that be bom bom bom ( ai ye ai)) and stuff for xmas.......I'll of course keep my scar out of it for now!
I seem to have a like for essays, never did at school though.
Big thanks the padded cell image had me in fits of giggle
Thanks all of you for your supportive comments
Yep Mr wet Behind the Ears was only a twinkle 20-30 yrs ago. And the way he is going he wont get another 20-30. Or maybe we can give him the padded cell with a uke. Liking that
