Cold cap help

FormerMember
FormerMember
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Hello I've recently been diagnosed with breast cancer and a month on I'm still waiting for a plan of action but I have been told it with be chemo surgery and radio. I am not looking forward to any of it but I've been dealt this horrible card so have to get on with it. I am wondering if any of you had the cold cap and what was the results as I'm not prepared with a wig as I have no idea where to go for one :( thankyou xx

  • FormerMember
    FormerMember

    Hi Allalone43,When i lost my hair and was crying  then my 10 year old boy said Mama u looking more hotter than Shakira.Do not worry about hair.i do not use any cold cap.Life is more important .Hairs are fully back and very thick.Now everybody says i don't look that i have struggled last year.lots of love and hugs

  • FormerMember
    FormerMember

    I was going to cold cap until I went in for my first chemo and then decided I wasn't going to.  My husband cut my hair off and yes I cried alot but once it was gone I actually had one less thing to worry about.  I found a local salon that did wigs but you can also get some very good and not so expensive one's on Amazon.  I had one for the day I washing my other one.  I finished in July and have got a head full of curls which I absolutely love.

    Good luck with everything.

    Alison x

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou I'll have a look on amazon to see what I can find. I have been given a £100 voucher towards one but will ask tomorrow when i see the chemo guy where I can go lol x 

  • Hi ,

    I am using the cold cap. I have had 5 treatments out of 6 so far. It is uncomfortable but not as bad as I was expecting. I was fully prepared to yell take it off if I could not stand it. The first 10 mins are the worse, You have to have it on before and after the actual chemo infusion so it does make it last a little longer about 1-1 and a half hours longer. (different for different chemo drugs). I have lost an awful amount of hair, probably about half because I don't think the caps at the start fitted that well. I can disguise the patchy bits with headbands/scarves. 

    I did also get a wig but I find wearing it is quite uncomfortable and rather hot. I am not quite sure that I would fancy wearing one in the summer months.

    Gay xxx

  • Hi All

    We have a local company which provides wigs via a voucher issued by the hospital trust.

    I made an appointment with the salon and they fitted me with a wig which I came away with same day. It is not e same as my old hair but is as good as.

    I'm in Hartlepool and travelled to Darlington for my wig, which I found easy and stress free. This sounds like it's not available everywhere which is a shame. 

    Good luck !

    Maxine




  • FormerMember
    FormerMember

    Hi Allalone43

    I have used the cold cap for all of my sessions.  I had 4 sessions of EC and i am on my 7th session of taxol.  I had the most significant hair loss after my first EC but since then, the loss has been minimal.  So i really think it is worth it.  I had very thick hair and now its fairly thin so i wear a wig to work just because my hair looks limp, and a hat or cap otherwise.  But certainly worth it.  i was also put in touch with a hairdresser who specialises in products for chemo patients and alopecia sufferers.  Daniel Field - http://danielfield.net/29-2/ - it has really helped me.  

    And the cap is cold but only for the first 15 minutes - then your head is numb!!

    Good luck

     

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou georgieCC 

    Maybe I'll try it and see how I feel. I am based in south wales so don't think danielfield would be useful for me. I am seeing the chemo guy tomorrow so will be asking about where to get a wig. Hope you're ok xx

  • FormerMember
    FormerMember in reply to FormerMember

    Good luck!

  • Are you going to Velindre for treatment? If so they will give you a leaflet with details at the back where you can go for a wig. There are wig places in Cardiff, Cowbridge, Pencoed, Usk and Port Talbot.

    Gay xxx

  • FormerMember
    FormerMember

    Hi, I'm based in S Wales too and had treatment in Velindre. I had 6 sessions of FEC followed by 15 x radiotherapy.  I used the cold cap but  can't say it was successful for me as I did lose a lot of hair but didn't lose it completely which meant it began to grow back quickly once treatment ended. They gave me a list of places for wigs which accept the NHS voucher. I also bought one on ebay which I ended up using more than my more expensive one. 

    Good luck to you xx

    SS