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Hi there I got diagnosed back in November of 2022 at the age of 31 with a grade 4 glioblastoma. In the last few months I find myself struggling more and more with my mental health. I’m not the same person I used to be I’m fed up of being tired and in...
Sorry for this long-winded post, but it’s my first. I’m 37 years old with 2 young children (7 & 3) and had a 25mm malignant tumour diagnosed on 5th February 2026. The tumour is located on my left frontal lobe, on the outside of the brain above my left...
Hi my name is Pam Next week will be having radiotherapy x 5 , but worried about side effects tumour has been removed so only tumour bed being treated. Anyone had this done any advice would be helpful Thanks Pam
Hi, today I received a diagnosis of a fast growing tumour on my brain - glioblastoma I think. Much worse news than I was hoping for. I was originally referred fror non-urgent mri after routine hearing test in May 2025 showed asymmetric in my hearing....
I wanted to ask this here, because my dad has a habit of acting like everything will be okay and holding back information and downplaying things, so I'm struggling to get a realistic picture. She was having very intense headaches for the past couple of...
Hi, I was diagnosed in May this year, surgery in June and straight into radiotherapy and chemo for 6 weeks which i finished 3 weeks ago. It's been quite horrendous dealing with the after effects of the radiotherapy, as the medical team warned but coming...
Hi, I have recently been diagnosed with a meningioma and wondered if any one could give me some advice. As of yet I have had no follow up appointment since being diagnosed and feel completely in the dark regarding my condition. My head has been in...
Hi , new to group. Short version. had breast cancer her2 positive oestrogen positive. All treatment and surgery done. All clear for 8 months one met found in my brain . Craniotomy done ok n 2024 radiotherapy . I'm responding to treatment but scared stiff...
Hi everyone I've just finished week 2 of 33 radiotherapy fractions. I've been on long term sick leave since last July from surgery during which I had a minor stroke and had to spend quite a while in a rehabilitation ward to recover. I've been fortunate...
Mum was admitted to hospital on 21st December after a few days at home with what she described as a chronic headache and sickness. On the 21st she was taken in with a suspected stroke . The panic and fear that hit our family in that moment was unreal...
