Has anyone had radiotherapy to cerebellum?

Hi Pam

I am sorry that you have not had a reply yet to your question but sometimes it can just take a few days longer. 

My own cancer was different to yours but I had radiotherapy in 2022. 25 sessions. The side effects can vary according to which part of the body is being treated and I remember being told that everyone is different. The thing I found is that each day when you go in, they ask you how you are and whether you are having any effects. When I did have side effects they could on the whole be managed with medication. I do recommend asking your radiotherapists for their advice and they will be able to tell you about any effects you may have, what can be done about them and what things to look out for. 

One thing I noticed and was also told could be common was that once treatment had ended I did continue to have side effects for a while longer. I also found I had a fair bit of fatigue. 

Hopefully someone who has had the same type of radiotherapy will soon see your post and offer some support. In the meantime, I wish you well for your treatment and do please give the Support Line a call if it would help to talk things through with someone. 

Jane

Thank you so much for your reply , just so afraid at the moment xx

Very understandable. I remember being afraid having different treatments. Once that first one is done it may help- I found once I knew what was happening and what to expect- it was sort of a countdown to get those sessions done. I had 25 sessions and it almost became a routine. My team was lovely and really supportive as I am sure yours will be. 

Wishing you the best of luck and do let us know how you get on. 

HI Pam

sorry for the delay in replying. Life's been getting in the way.

I supported my late husband G through the 3 years of his stage 4 brain tumour journey. Following his surgery, he had 6 weeks of oral chemo/radiotherapy in combination and coped really well. His biggest complaint about the radiotherapy was that the nurses kept squashing his nose with the mask. The only real side effect, other than losing a line of hair along his scar that was being treated, was fatigue. For him this kicked in around week 4 and lasted for a month after the last treatment cycle. 

There's useful generic radiotherapy information on the main website. Here's the link

Radiotherapy | Types of treatment | Macmillan Cancer Support

This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of positive energy.

love n hugs

Wee Me xx