Breast cancer met in brain

Hi Heldo 

I’m Anne, one of the Community Champions here on the Online Community, and although I've had different cancer diagnoses to you I know how scared you're probably feeling right now.

As you know, the online community is divided into different support groups so I'm going to recommend that you also join and post in the secondary breast cancer group as you'll then connect directly with others who have the same type of cancer as you. 

To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi Heldo ,

Feel free to post whatever you like on here.  We're all going through similar things.

I also have a metastases in my brain, although my primary cancer was kidney.  This no doubt drives different treatment options.

I know it is a lot to take in.  My metastases was found three years ago, in Dec 22, following a prolonged period of balance issues.  I also responded well to treatment and this got better for a while.  It is back now, with other strange symptoms.  I now have eyesight problems with my right eye no longer moving; so the two images from my eyes don't align and I have constant double vision.

I know my prognosis isn't good.  It's something that I have come to terms with.  Makes such a difference getting all your affairs in order. To start with, I couldn't sleep for worrying about it.  Nothing is perfect but I think I am now in as good a position as I can be.  There is nothing I can really do about the future except prepare.  I'll focus on trying to enjoy whatever time I have left.  Which for me means going on holidays as long as I can.

Still hard to talk to loved ones. Most people just want to hear I'm feeling fine.  Truth is I'm feeling Wabbit (not certain that's a real word), just knackered and dizzy. So a lot of sitting reading interspersed with short flurries of activity to get housework done. I like to do things as it makes me feel useful.

Best wishes and ask anything you want, or rant away if that works better.

Hi and thank you for your honest reply . I have put all affairs in order probably first thing I did tbf.  When my met was removed I lost peripheral and lower vision in left eye so have to use a white stick when out .  Balance is a problem too .  I'm a strong person always have been so people expect the same but inwardly I'm screaming . Not everyday but I have my moments my life and plans have changed . I feel for my husband as everything we planned for retirement has gone .  But I am living and doing well just now and generally have a positive outlook .I tell people I've accepted my diagnosis because it makes them feel more comfortable and in part I have.  I got  a wonderful family who are all getting on with life as they should and I'm getting on with it too . Some days I forget what I've got and feel like me again but the C does creep back in and bring me back down lol .  I'm sorry your going through all this too you .  It definitely changes you as a person . Well it has me x