Hi, today I received a diagnosis of a fast growing tumour on my brain - glioblastoma I think. Much worse news than I was hoping for. I was originally referred fror non-urgent mri after routine hearing test in May 2025 showed asymmetric in my hearing. Scan finally done in Jan 2026 showing hearing & associated nerves fine, but something unexpected on my brain. Mri with contrast followed and first appointment with consultant today. Will be having pre-op and op i next 2 weeks, to be followed by radiotherapy & chemotherapy, but also told likely it will still come back. I hav been fit & healthy with no symptoms to date so this has been devastating shock. I have good support from friends and brother. How do any of you remain positive going forwards inthis situation? Also happy to hear from those in Awake all night forum as had previously posted there, as sure I’ll be having more sleepless nights. Thanks for reading.
Hi Homebird, what shocking news, I’m really feeling for you today.. 
️ Glad that the op will be soon though. ️
I was in the same position four years ago, and am getting biannual MRI scans every year. One thing I can tell you is that after an operation, radio and chemo, I had no trouble getting to sleep! I still have naps whenever I can, so I’d advise that whenever you get tired (if possible).
Sounds like you have great support - it’s everything at a time like this, right? If you have any questions, do ask - I took a lot of notes over the last few years.
Xxx
HI Homebird
so sorry to hear about all that has been going on, Life is too cruel for words at times.
I hope the appointment today goes smoothly and gives you a clearer plan of how the next few weeks are going to look.
I supported my late husband through the three years of his Glioblastoma journey so I can empathise with what you are going through.
I'm not big on giving advice. Take this journey one step at a time and focus on the facts as your own medical team tell you. Everyone's journey is unique to them so there are no hard and fast rules about how it plays out.
In G's case, he remained very physically fit throughout his journey right up until the last couple of weeks. His symptoms were cognitive (more like dementia) than cancer but he lived life to the fullest throughout. (You can read the gist of that tale in my bio)
At first he didn't want to tell anyone about his diagnosis until he absolutely had to. So, having read your comments above, who you choose to tell and when is entirely up to you. Don't feel pressured into telling people if you are not emotionally ready to do so. Take it at your own pace.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I am sending you a huge virtual hug and lots of positive energy
love n hugs
Wee Me xxx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
one step at a time is the best way. That's great that you've set up a What's App group with your friends. Asking for help and support can be challenging so glad to hear that your friends are rallying round you.
Remember you're never alone. We're here for you too.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
