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Good evening everyone, I hope you are all doing well and are okay. I have been using the forum on and off, along with the online chat facility for a few weeks and thought I should really post an introduction. My partner ( 52 ) has been diagnosed...
Hi everyone I’m posting to find out about people’s experiences with the level of treatment and care from James Cook University Hospital in Middlesbrough. Last year in May (2021) my wife (30yo) was diagnosed with a grade 3 anaplastic astrocytoma (the...
Gbm is cruel , it’s a harsh illness that robs us of our loved ones. Even with the standard protocol of treatment this nasty illness never goes away or returns with a vengeance. Brain cancer only has one percent of government funding unlike other cancers...
My dad was diagnosed back in August with a suspected glioma in his left parietal lobe. He had been having seizures and a MRI confirmed. Things moved very quickly for treatment and he's home recovering from surgery which was estimated to have removed more...
Hi my husband has just last week been diagnosed with a brain tumour. He had vertigo a while ago but no other symptoms. Last Sunday he had a seizure and was totally unresponsive, I dialled 999 and he was taken to hospital. The next day as he was lying...
I still haven’t worked out how to take part in this site, I’ve craved help from the beginning with my husband’s diagnosis of gbm 4 I it was never good, he had an operation to remove as much as possible chemotherapy and radiotherapy followed until his...
I am posting here as some kind of outlet because I am just at a loss as to what to do. My wife was diagnosed with glioblastoma at the end of July after suffering migraines for a while and going to the optician thinking it was something to do with her...
My partners personality has drastically changed and wonder if anyone else has experienced this, thanks
Hi Hope evsryone is doing ok. since my dad has had radiotherapy his appetite is slim to none and his on a waiting list to see a dietian. But his has no energy and some days doesnt eat anything has anyone else been through this
Hi, I have just joined this group as my husband was diagnosed with CNS lymphoma in June
