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My daughter and a 24 and had debulk of a stage 2 brain tumour done back in April , had 6 weeks of intensive radiotherapy which after week 3 caused her hair loss, she’s been suffering from focal seizures and has had a couple of unconscious seizures all...
Hi I am a newbie my son got diagnosed with a pontine mass (tumour) 2 days after his birthday and is inoperable and no biopsy as this may kill him or seriously handicap him to say me his dad and younger brother are devastated is an understatement.After...
Hi everyone , so glad to have found this forum , have struggled since May since my hubby Glioblastoma diagnosis. surgery in June 23 was positive with 95% tumour removed , 30 sessions of radiotherapy completed and now a slight break before oral chemo ...
Morning I'm really struggling and just wanted to write things down really. My husband has gbm4 diagnosed last October. Had surgery, radio etc and just finished 6 months chemo. He's doing really well and we are hoping for some stability even very short...
Hi folks. Not been here awhile,but right now I am looking for a bit of help and advice. I have grade 4 Glioblastoma. Terminal. My treatment,as you all know is just to try and keep the tumour at bay. My original radio/ chemo treatment hasn’t worked. Therefore...
I am on the waiting list to have a meningioma removed. Does anyone know whether I will have to be awake for the surgery?
It is a difficult thing to say that we've been hurting but I want to write about this because I don't think we are the only ones. The cancer seems to amplify any relationship problems we've had over the years - things which used to be manageable and makes...
Good afternoon reading everyone stories about either living with or support someone with cancer is very valuable for me. My journey started five years ago but as said before no memory of how it started because my tumour has robbed of memory hearing and...
Hi, I am looking after my brother who was diagnosed in May 2022 with 3 glioblastamas, he had terrible headaches and was confused, not sleeping, locked himself out of all bank accounts and credit cards, plus many other scary things. He lived on his own...
Hi all. Just thought I would say hello. I’m from Edinburgh, Scotland and have a grade 2 oligodendroglioma. I had surgery nearly 2yrs ago. My surgeon was great but I still have some tumour left in my brain. I have a lot of cognitive issues, head pain and...
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