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Hi,I was diagnosed with my BT when I was 16 weeks pregnant with my 23 year old.i was told at the time I'd live to my 40s but was given 2 weeks to live unless I had surgery ASAP but a specialist ane thetist had to consulted first to try and save my unborn...
Hi all, and thank you for having me. recently diagnosed with a tumour at the base of my skull on my spinal cord. (Ependymoma). All I know is it’s 2cm x 1cm x 1cm. I know nothing else as my doc said he didn’t know much about it either. I have another...
Hi I am Pati My 50 yr wife has been newly diagnosed with high grade Astrocytoma( Grade 3 as of now on preliminary histology report,) but waiting for final report which can say 50/50 chance of either Grade 3 or Grade 4. Can anyone help to explain to...
Hiya. My mum has had lung cancer for 2.5 years finished all her treatment in august - and cancer stable and shrunk - then a couple weeks ago - mum was poorly - confirmed brain met, - she is starting full head of radiotherapy today - 5 sessions - does...
Hello everyone, I've recently been diagnosed with a Brian tumor. I've had symptoms for over a year now like headaches going all the way down to my right eye ect. Ive had mri scans which has show a tumor. I've seen a neurosurgeon and he has said it needs...
The last six months have been horrifically life changing. My daughter (late 20s) had an out-of-the-blue, "seemingly neurological event" and this started a massive sequence of events. Unknown diagnosis, lots of guesswork, two weeks in hospital, brain tumour...
I’ve tried to search but can’t seem to find any information. Does anyone know How long I have to wait before I can dye my hair after radiation to my brain? I’ve not had chemo and my operation was nearly 2 months ago. thanks in advance!
Hey everyone and hope all is good as it can be my stage three ( see my scribbles ) has grown a bit and they’re changing my chemo to CCNU 1 tablet every 6 weeks. dies anyone have any experience or knowledge of it Thank you WJ
Hi all, just a greeting and to see if there are any diagnosis similar to myself. I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began last year during covid.jan 2022. I woke up ( having only a mild covid sniffles) in the...
Hello. it’s my first time in this group. My husband, 52 years old had a seizure in Apr 22 while walking along canal side and was rushed to hospital in ambulance. He underwent various tests and was diagnosed with brain tumour. Jun22 he had his surgery...
