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Hi, I know that's no real answer to this but I'm feeing so low, so confused I think it might help to ask. I feel like my body is giving up. I've had 6 weeks radiotherapy, chemo and1 cycle of 5 days Temozolomide. I'm currently on a break, start my next...
Hi, I was diagnosed with intercranial germ cell tumours 34 years ago at the age of 17. I never had surgery, chemo and radio therapy only. My pineal tumour destroyed my pituitary gland and have lived with the effects ever since. I know that my diagnosis...
Hi All, My Mum was diagnosed with breast and lung cancer last year. At Easter we were told it had spread to the brain and spine and immediately we saw a decline in her mobility, memory and incontinence. We have now been told her prognosis is 3 to 6...
My husband has been treated for Glioblastoma. Radiotherapy and chemotherapy have been completed. He has been on steroids since the beginning a year ago. I have been reducing the steroids, as per doctors recommendation (Dexa). He has been on 1mg for...
Hi everyone, I’m new to the group and wanted to introduce myself. My name is Lisa and I have had an intruder since 2020. I’m 49 and was diagnosed with a suspected DNET brain tumour following a long and quite stressful diagnostic journey. They can’t...
Hi, I feel a bit out at sea at the moment. My husband and i have been married for 32 years and he was diagnosed last year with Grade 4 Glioblastoma, operation to remove most of the tumour, and we have finished 6 weeks of radiotherapy and 6 months of chemotherapy...
Hello. And what a great service and site thank you. im not sure what to ask which I guess isn’t unusual. Mid Feb 2026 I had 1st seizure. No history of injury, tea-total, no infection etc. I’m a retired dual regd nurse (rgn/rmn) so have some knowledge...
Hello everyone, I joined this board a few months ago but haven't been brave enough to post, or even read stuff before now. So here goes... I've had craniotomy resection end of May last year, ("significant debulking"), biopsy came back grade 3 astrocytoma...
Hi all. Does anyone have any suggestions for non pharmaceutical alternatives to Lansoprazole please. Ive been on Dexamethasone since diagnosed with primary lung and mets brain, liver, lymph, bone and Adrenal. The Lansoprazole was prescribed to protect...
Hi everyone, I'm new here. My dad was diagnosed with grade 3 anaplastic oligodendroglioma in summer 2018. He had radiotherapy and oral chemo, and because of the genetic signature of the tumour the doctors felt able to make a prognosis of a decade or...
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