Non germinoma germ cell tumours

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Hi all,

My son was (25y) at the time of diagnosis with non germinoma germ cell tumours to the pineal and pituitary glands plus LMD. Has anyone else had similar diagnosis? I understand it to be a rare type of cancer so not met anyone who has been able to relate whether as the patient or a relative.

  • Hello  

    I am Brian one of the Community Champions here on the Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying it will be "bumped up" to the top of the group and I hope seen and answered by other members of the Brain Cancer Community.

    I do hope you find an answer to your question and wish you well moving forward.

    Best wishes -Brian.

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  • Hi CiciCici

    a warm welcome to the community. Sorry to hear about your son's diagnosis. Life's too cruel at times.

    This isn't a form of cancer I'd personally heard of but there is some info on the website that might help a little. I looked it up for you - Pineal region tumours - brain tumours that start in or around the pineal gland. | Macmillan Cancer Support

    This is  a safe and supportive space where everyone's experience is different. Hopefully someone in the group has some personal experience to share with you. Please reach out here anytime though as there's always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    For now though, I'm sending you both a huge virtual hug and lots of positive energy

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm