Glioblastoma

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Hello Everyone,  I am sorry I did not intorduce myself.  I joined the forum to find people going through the same situation as myself. As I previously said, my Husband of 53 years was diagnosed in May with this horrible tumour and yesterday was taken in to Hospital and now has Sepsis on top of everything else.  How much more his poor old body can take I do not know.

Treez

  • FormerMember
    FormerMember

    Hi Treez welcome to the forum and I am so sorry that you have not had a response as yet. It sounds like things are really tough for you both right now. Is there any news or update re your hubby's progress.? How are you feeling and coping.? If you felt that you would like to speak with someone directly then please give the Macmillan Line a call and have a chat with the folks there. Sometimes it helps to offload to someone that is not family and they are good listeners. Sending some hugs your way for now. Gail xx

  • Thank you Gail for your concerns.  Yes, it is tough, especially as now he is fighting Sepsis now as well as the tumour.  I will take what you say about chatting to someone at Macmillan.

    Treez xx  

  • Hi Treez

    a warm welcome to the group. Sorry I missed your first post as I was taking a break from the forum and am only just back.

    I supported my later husband G through the three plus years of his Glioblastoma journey so I can relate only too well to what you and your family are going through. G was 50 when he was diagnosed. 

    A GBM journey is an emotional rollercoaster ride for all involved. You'll be amazed by just what the body can take. I hope the hospital get the sepsis under control. We had one infection scare the day after G got home after his surgery ( I assume it was sepsis but no one actually said at the time but it was scary and wasn't good) He recovered from that after a few days but it was touch and go for a bit till the antibiotics kicked in.

    I'm not big on giving advice as you'll see from my other comments/posts but I'd encourage you to take this journey one step at a time. Focus on what you are being told and not the what ifs. Easier said than done I know. There's another group within the community that you might want to explore - Glioblastoma multiforme brain tumour forum | Macmillan Online Community I personally drew a lot of support from both this group and that one.

    As you've already seen this is a safe and supportive space so please reach out here anytime. There's always someone about to listen who get it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

    If there's anything I can help with please just ask. 

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    For now I'm  sending you a huge virtual hug and lots of positive energy.

    love n hugs

    Wee Me xxx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Treez, I am new here too my Husband was given a few months to live 23rd April with nothing but a black hole for two weeks but he has now completed 3 weeks radiotherapy.  over the weekend he took a tooth infection and his face doubled in size he got antibiotics and they seem to be working.  If the medical team can get on top of your Husbands infection now then please keep asking questions as you feel as if you are stuck in a vacuum and can’t get out.  It’s a constant battle I pray for restoration of your Husbands health Pray