Deteriorating

Hello

sorry to hear about your mum. Not sure I can be very helpful here. One thing I have noticed is there really isnt  a normal.  Some have common traits but every journey is different. 
some go downhill fast, others have years ahead. Do make sure the doctors are checking for other causes. My mother had dementia and so much effort was put into that nobody noticed she actually had cancer. 
i would also press for  answers. Maybe your mum asked that her condition not be discussed with others? I have done this and my medical team have promised they will seek my permission before speaking to my husband. 
i hope you get answers soon 

Hi, this sounds very much like my husband. He has GMB4 , diagnosed April 23. Had debulking, radio and chemo, followed by 11 months chemo. After 6 months, recurrence of tumour, just completed round 5 of more chemo. Had an MRI in May, oncologist very pleased, tumour had shrunk considerably and swelling gone, but we were expecting the worst news as he’s deteriorated so much in the last few months. Barely walking anywhere, sleeping a lot, big increase in weight, eye sight playing up a lot. Just can’t understand why he’s deteriorated so much when results are so positive. Nobody gives us any answers, maybe they just don’t know. 

I’m so sorry to hear this. It’s such an awful illness. My mum is the same with her sight she’s lost her Peripheral vision. 
No quality of life at all. Sending you and your husband all the love and hope xx 

Thank you, it’s so hard isn’t it, you’re constantly in a state of nervous exhaustion. I’m emotionally and physically drained