Complimentary Dietary Changes to support Standard Treatment (Radiation-Chemo) for Glioblastoma Grade 4

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My husband was diagnosed over a month ago with glioblastoma Grade 4 and underwent surgery to remove the tumor as well as further post-operative surgery to remove infection caused by the first surgery and a course of serious anti-biotic treatment.  He is due to start radiation treatment and chemo shortly. He is now finally back home and we are looking into making dietary changes as it is now possible to control the food intake better than in hospital environments.

I did not find anything in particular on the forum in connection with dietary support in fighting glioblastoma but with a view to not damaging the efficacy of chemotherapy.  

Has anyone grappled with the choice between a Keto-based diet versus a plant-based (very low carbohydrates) diet?

Has anyone encountered success with vitamin supplements?

  • Hi Cicada

    a warm welcome to the group. Sorry to hear about all you and your husband are going through.

    My husband was diagnosed GBM4 in Sept 2020 so I can empathise with the journey you are on.

    There was a question on here recently about diet, but consensus seems to be that people are being told to eat a healthy balanced diet. My husband is a fitness fanatic (marathon runner) and when we discussed diet with our CNS she advised high protein and to ensure he is well hydrated. 

    To be honest, he doesn't follow a strict dietary regime. He eats far too many sweets, biscuits and crisps and enjoys a drink or two but so far he's exceeded the doctors' expectations. 

    He doesn't take any vitamin supplements although he did take vitamin D and calcium for a while. He developed osteoporosis after extended use of blood thinning injections. 

    This is a safe and supportive space so I'm confident other members of the community will be along shortly with their words of wisdom. I'd suggest chatting your thoughts over with your CNS before making any drastic changes or perhaps asking to be referred to a dietician. You might also want to check out Glioblastoma multiforme brain tumour forum - Macmillan Online Community and this link from the website Lifestyle and well-being after treatment | Macmillan Cancer Support

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    Sending you both a huge virtual hug. Please make sure you are taking good care of yourself here too as this is a roller coaster ride.

    love n hugs

    Wee Me  xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi

    Sorry to hear about your husband’s diagnosis

    I am undergoing treatment for a brain tumour although I did not have surgery, I am a vegetarian so mostly have a plant based diet although I do eat dairy and eggs. I did not have any sickness whatsoever, in fact they took me off the anti-sicknessdose that I was on and I only took the absolute minimum that the doctors were comfortable with. My oncologist did say to eat and drink what I want because maintaining weight was more important than anything else at that time. Are used to take vitamin supplements before I was on chemotherapy because I was worried about my iron intake, but I was advised by the pharmacist thatvitamin C in particular can affect the chemotherapy so you need to watch how much of that you have and if the vitamin supplements are any more than 100% of your recommended daily intake then this will have a negative effect. So I stopped taking the supplements and tried to get all the required vitamins through diet

  • My husband had surgery back in May diagnosis end of May glioblastoma grade 4, and suddenly been told by letter wild?