Our symptoms

I keep a blog of what goes in for me but you are right. I think I’ll put how I’m doing in there

Had brain surgery nearly 2 weeks ago, but have not yet started radiotherapy, so just the steroids, anti-seizure, calcium and vitamin D ATM. I have been shocked by how my physical health and mobility have been impacted. I am 56 and was fairly fit and active prior to diagnosis.

I need to use a zimmer frame indoors and even with that, I need to be v careful as my knees sometimes turn to jelly. I need to sit down quickly rather than just collapse in a heap. I use a stroller outdoors and try to walk up and down the garden if I feel up to it and it’s dry. The gentle activity helps to open up my lungs , stretch my torso and relieve back ache.

Not a symptom but an effect, mostly I am bored. I can’t really concentrate on anything and am easily distractible. I do some puzzle books and a bit of reading but mostly think about what I will eat next!!!