Hi All, I'm Nikki, in my 30's, 3 kids aged 13, 11 and 7. My mum is Sarah, 59. Mum went into A&E on the Fri 19/04/24 thinking she'd had a mini stroke (words slurring, face slightly dropping, intense headaches) She was in hospital for a week and had...
Hi My husband had a seizure early December'23. on 26th February he was told he had an aggressive glioblastoma, untreatable and incurable: 3-4 months without treatment; 12-18 months with treatment. Oncologist told him that it had spread so much that...
My dad had a cataract operation early March. Following this he had word finding difficulties and then had a “funny” sensation in his right arm. He was taken to hospital with suspected stroke. Few days later an MR revealed glioblastoma stage 4, treatment...
I am so thankful today I stumbled upon this website and forums, as I started to really feel alone in this. My ex partner, has now been battling Glioblastoma Multiforme since 2019, or was it 2018. Time does not matter too much now, for him or for his...
Starting treatment 11 January.
On the 21st December 2023 my dad was diagnosed with a brain tumour at the age of 61, we later found out after the Christmas rush that it was grade 4 and ‘aggressive’. My dad was operated on in the 3rd week of January and about a month ago finished his...
I am currently on day 5 of treatment cycle 2. I am on actriple dosage of chemotherapy. Temozolamade 400mg. 5days on, 23 days break, per cycle. 6 to 12 cycles depending on how scans look after the 3rd cycle. Anybody else having the same treatment?...
Hi, I have recently been diagnosed with grade 4 gliomas astrocytoma. All very shocking and things have happened very quickly. I had two tumours and one and a half have been removed. I start radiotherapy and chemotherapy next week. My cycle is 6 weeks...
So Friday 15th, After having an MRI on the 14th, my Wife and I went to get the results of my scan. This was an MRi to see whether or not the 6 weeks of treatment , being Radiotherapy and chemotherapy have made any impact on my tumour. I'm delighted...
Hi everyone. I’m scared, I am 33 years old and recently been unwell. When I was taken into hospital they did a CT scan and found a lesion on my temporal lobe. They first thought I had a mini stroke so admitted me to the ward. the neurology consultant...
