Hello all, Hoping there maybe someone out there who has been through this type of chemo. So quick bit of back ground. Female, 41 at time of diagnosis. Oligodendroglioma grade 3. Found after seizure and had a craniotomy a few weeks later where about...
My wife had her second op on the 3rd of july. Her recovery has been alot different this time around. Sleeping alot more and struggling with mobility. We are still waiting for results. As I mentioned in a previous post they think it may be PXA but they...
Hello, I have been suffering with ear pain for 2 years now and recently my ENT doctor has referred me to a hospital to get an MRI scan because he believes i have an Acoustic Neuroma. Now after some research i am very thankful to find out that they are...
1 was diagnosed sep 22 with grade four glioblastoma, had it de bulked had radio until dec 22 and chemo until dec 23 and treatment stopped.Tumour started shrinking although it’s shrinking, she can now barely walk my legs are so Weak i sleep most of the...
So I was diagnosed in September 2022 with stage 4 brain cancer (glioblastoma) and I’ve so far made it too July 2025! For months now my tumour has stayed shrunk and was consistently stable, until… I had a scan which are just routine on the 13-06-25 and...
Hi guys, my sister is currently taking the steroid dexamethosone and it's caused her face to swell so so bad it's round. Obviously I don't care, whatever works right? But shess not going out, not talking to anyone because she's so embarrassed by her face...
I'm hoping someone knowledgeable can take a look at my pill popping regime and advise whether I've covered all bases other than CBD oil which I need to grill my oncologist about. I figured that if I try as much as possible, I won't have any regrets...
I'm now day 21 after radiotherapy has ended. Hospital says, 2 to 3 weeks would be peak tiredness. I feel it isn't lifting and I'm in the depths and not coming out. I guess I'm maybe looking for reassurance that it passes if anyone has that experience...
I’m starting both radiotherapy and chemotherapy (temozlomide tablets) in just over a week and I’m feeling more and more nervous about the side effects of both. I’m having this done 2 months after I had brain surgery to remove my astrocytoma which has...
Hello all, My husband is due to start his final round of PCV soon. The last 3 cycles he has had he has broke out in really itchy hives and had a reaction to the drugs (we dont know which of the 3 drugs it is). The doctors usually take him off of procarbazine...
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