Hi everyone, My husband started his 5 higher dose radiotherapy treatments last Monday (as opposed to 30 smaller doses), he had 4 daily appointments as planned with the last treatment arranged for this coming Monday as the machine was having some 'routine...
Following a radiotherapy assessment appointment last week, my husband now has 2 hospital appointments tomorrow, one for yet another MRI scan, and the other to make his mask ready for the 30 radiotherapy treatments over 6 weeks. I must admit I do have...
Hello everyone, my lovely mum was diagnosed with an inoperable glioblastoma in February after a biopsy. She had been experiencing what we thought were falls as we didn’t see them happening but now think they were seizures for a couple of months before...
I’m due to change onto Lomustine as TMZ doesn’t seem to be controlling my Astrocytoma recurrence but all I’ve managed to find is horror stories where it’s been unsuccessful or has made things worse. Does anyone have any positive outcomes from using Lomustine...
Hi I am new to the group. My mum, 64years has been diagnosed with an incurable glistoblastoma. We were hoping and hoping it wouldn't be this but these are the cards we have been handed. Treatment starts in a few weeks and she is staying brave. The prognosis...
I’ve recently been diagnosed with a schwannoma 12mm x 6mm in my left internal Meatous. My doctors told me I’ll more than definitely need surgery to remove as I’ve lost nearly all hearing to the left side. So difficult to know what to think and what’s...
Hi, I'm due to start my 4/6 rounds of Temozolomide next week after a few weeks break from radiotherapy and chemo. I'm not really enthusiastic about it tbh after feeing so poorly after the radiotherapy but I'll give it a go. I assumed i would just...
Hi everyone this is my first post and I’m sorry if this is a long rambling post . My partner was admitted into hospital on Sunday night after suffering a seizure . After having a ct scan Sunday then an mri on Monday we where told that they had found...
We found out very recently that mum has brain cancer after she had lung cancer last year. Has this happened to anyone on this forum? Everything gives a time limit on this. I’d really like to hear any personal experience until we know more x
Hi, I was diagnosed with a brain tumour thought to be grade 2 after having seizures every day for 9 months that A&E/gp didn’t deem serious enough. I had surgery in July which removed around 90% of my tumour, which was very large but my surgeon said it...
