Hi my husband has just been diagnosed with a high grade tumour. We have 2 young children and I’m overcome with emotions and don’t know what to do for the best. We are waiting for more apts to see if it’s spread and to find out what the treatment plan...
Hello, I have just joined this group as my 28 year old son has a rare form of Ewing sarcoma. He is handling it better than me, bless him. He started his chemo 2weeks ago.
Morning I’m supporting mum who has been diagnosed with bone cancer in her elbow and pelvis after having breast cancer 2 years ago, she’s 79. She is in a full arm cast and really struggling. It seems to be taking time for all the tests and I would welcome...
Hi All, I am quite new to the boards, but have read some stories, so thought would add ours. Husband has been diagnosed with Chondrosarcoma. The tumour has grown from a rib probably, but is now near the spine, so quite large. He has had one unsuccessful...
Hi, My wife has today received a diagnoses of cancer in her right humerus bone. We're a bit skocked to say the least.
I'd always been a very active person having been diagnosed with osteoporosis due to coeliac disease whilst in my late 40s. Once covid hit and I wasn't able to attend my usual fitness classes I started walking a few miles a day. After a couple of weeks...
Hi, I was diagnosed with Metastatic Extraskeletal Myxiod Chondrosarcoma in late August 2021 and underwent a Distal Femoral Endoprothesis in October. I felt that my recovery was going resonably well at first - I was off crutches by the second week of...
Hi all im sorry if this has been brought up before. I have recently been diagnosed with a chordoma on my sacrum and can’t seem to find anyone else who’s had this. I’m 31 and terrified of the aggressive surgery they’ve described which could leave me...
Hello
Hi everyone, i was diagnosed with a very large sacral chordoma in Dec 2019. in Feb 2020 I had 19 hour operation over a 30 hour period.I then had 2 months stay in RNOH Stanmore. I now have permanent stoma, need to self catheterise and loss of sexual...
