People of any background, gender identity or sexual orientation etc can be diagnosed with cancer. Please be welcoming and supportive when talking to others.
We keep this a safe space for everyone. To find out more, take a look at our Community Guidelines.
Hello all, I’m new to this group. I had a radical Cystectomy back in Oct last year and I think I’m doing ok. I am reluctant to go out for too long as my bag needs to be emptied every hour and a half to 2 hours which is quite restricting. I am going to...
Hi to any keen golfers on here. I am awaiting my cystectomy and urostomy in mid January. I am wondering about the impact my changed circumstances will have on my golf? I am Handicap Secretary for a Golf Society, plus have other golf buddies, so often...
Well it is wonderful to communicate again after months of problems logging on to the forum. How are you all ? I can read all your messages but unfortunately cannot reply or post new discussions. I have just finished a six week course of Chemotherapy ...
Hi everyone hope you are doing okay. The last few weeks I’ve been getting spouts of tiredness that maybe lasts about 5/10 mins but then I’m fine, I’m still able to do my normal daily things, I’m just wondering if anyone has had this before?
Anyone have covid with the cancer? Any complications.? I have a tight chest temp and aching all over, spoke to Dr's but not classed as high risk with this cancer type..
Hi All. Just back from hospital after having my annual flexible cystoscopy. In and out in less than half an hour. All good, phew. Still signs of radiotherapy burns, but not a problem. Anxiety over for a while.. Best wishes.
We are currently caring for my grandad who’s been diagnosed with bladder cancer that’s metastasised to his bones, lungs and also l4 vertebrae in his spine. He’s now palliative care but we still don’t know what to expect because no one’s telling us anything...
Hi My husband was diagnosed with bladder cancer in December 2018. He had surgery and ended up with bladder removal and a stoma. He had chemo and was on an immunotherapy trial. All his treatment ended in August 2020. In June 2022 he had a seizure and was...
Had 2 courses of BCG. 12 in all. Had absolutely no side effects at all. Unfortunately it didn't work for me and had to go down a different road (radical cystectomy) It's different for everyone so good luck.
Hi all just to let you know I've just got back from Norwegian ffords cruise..we sailed from Southampton which was really easy .. had a great time did quite a bit of eating and drinking of cocktails felt very relaxed .. visited some beautiful places and...
