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It’s 5 yrs this afternoon since I got the diagnosis and told I would need a cystectomy.Thanks to everyone here for your support.It has meant a lot to be part of this group.Love to all Jane xx
Hi Everyone, thank you for all your support on my original post whilst waiting for my results. Now having that result, I thought I would ask for any advice on how to get through chemo and the operation to follow. i am being very positive as last week...
Hi it will be five weeks tomorrow since I had my turbt I have my appointment on Friday with the consultant for my results every time I try to discuss the results and what could happen my wife keeps saying that if my results were bad I would have been...
Hi everyone. I had my TURBT on 12th July. The surgeon didn't remove all of the tumour due to excessive bleeding and theatre time. I have a catheter for 2 weeks. The only good thing with that is not having to get up several times during the night for...
Has anyone in the group had Botox injections in the bladder and can give feedback on your experiences with them
I finished my 6 weeks of mitomycin treatment and now having to wait 8 to 10 weeks seems for ever , what if it has come back will I need the same procedure as the first time round or just more mitomycin?
I have been told that there may be the opportunity to have my bladder preserved by having preventive chemo combination of Gemcitabin and Cisplatin. Followed by Chemoradation/Radiototherapy. 1. Just wondered if anyone else has gone through that? ...
Im In so I’ve got around 9 months to get ready.. something to focus on…excited Nigel
For the past 3 years I have been peeing way too much. About 8 times per night and 1 time per hour all day even when not drinking alot of water. I have a weak stream and it takes me about 21 seconds to pee it all out at that pace. If I drink the amount...
I am the significant other to someone diagnosed with bladder cancer he also has autonomic neuropathy diabetes ,he has short bursts of being ok then not ok to explosive tempers where he wants to shut everyone out and totally implode his life he. Is not...
