Bladder cancer

  • 5 replies
  • 47 subscribers

I finished my 6 weeks of mitomycin treatment and now having to wait 8 to 10 weeks seems for ever , what if it has come back will I need the same procedure as the first time round or just more mitomycin?

  • Hi  . We know how stressful the waiting always is and it never gets any easier. They need to give the time for the bladder to heal and any inflammation to clear before they take a look. In the case of any recurrence, then it is usually back to square one with another TURBT. I hope all goes well. Best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • Good morning Forestranger. I finished a second six week mitomycin in May 2024. A cystoscopy last week showed red patches. I will start a third mitomycin series next week with a further cystoscopy in 6 months and biopsy. It’s rather like snakes and ladders, best wishes , John.

  • Thankyou for taking the time to answer my question at the moment I have a lot going on in my life apart from waiting game all very stressful

  • Hi hope all goes well. . I had turbt in may I've had 4 of 6 mitomycin infusions. The unknown is a real head scrambler. Been told conflicting times of next check ! How long has everyone else had between finishing treatment and having cystoscopy? Cheers Chris 

  • Hi Forestranger

    I finished my 6 weeks of Mitomycin yesterday (08/07/24)

    I thought I would have a Flexible Cystoscopy next and a discussion with the Doctor

    But I was told that I have to bring in a urine sample in 4 weeks to check for cancer cells and then I will have a rigid Cystoscopy under GA 2-4 weeks later

    So I wont know any results for months Worried

    It is very frustrating

    Much Love Tina x