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So finding the waiting hard!! I keep checking My Chart all the time. Getting annoyed with myself. Any advice? I’ll do whatever anyone else found helped!! Xx
Following my diagnosis of Bladder cancer in December 2025, and surgery to remove the tumor in January 2026. I did 6 weeks of chemotherapy. Today, 3 months on was my first c ystoscopy check at 8am. I went to the hospital with a lot of trepidation and...
Well I never thought I’d be joining a discussion group like this and still it hasn’t registered completely with me that I have bladder cancer. Had my TURBT on 1st July followed by the chemo straight into the bladder afterwards. Surgeon said removed a...
Hi...So I was diagnosed with bladder cancer and due to the type of cancer. the decision was made to remove my bladder and prostate...sucks ass...ever since my surgery 2 yrs ago I keep getting urinary track infection every 2 months ...I wanted to know...
Hi. I am post TURBT and awaiting the start of BCG in two weeks time. It’s Saturday evening so I can’t phone my GP until morning but …………#%* is it my GP I contact or do I contact my Urology Specialist Nurse if I think I have a UTI. Earlier this evening...
Morning, I had a meeting with my consultant yesterday prior to my surgery on Monday re kidney removal. He told me after reviewing my pet scan they had discovered a small tumour in my right lung which they said was not associated with the tumour in my...
Hi. My mum has been diagnosed with metastatic bladder cancer which has spread to one of her kidneys and lung. She is starting treatment next week which is an immunotherapy and a targeted drug. It hasn’t long been approved and is meant to have good results...
Hubby has a small recurrence of non muscle invasive tumour. Has had two Turbt for same before. This time having a Tula which we are not familiar with. Anyone had this treatment? Any advice appreciated.
So after a stressful long month, I finally had a ureterscopy yesterday as I had a thickening in the ureter. I am pleased to say all is clear both in the bladder, ureter and kidney . Plan is now for another cystoscopy in 3 months time then continue with...
Well as I'd heard nothing I emailed the CNS team for info on what's happening. Had a call today from one of them to discuss it with me and go over the results on the phone. So I'm clear at present the biopsies taken were benign. And they are downgrading...
