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Hi all, it’s been a long time since I was on their community group. What a roller coaster couple of years it has been. my husband was diagnosed with muscle invasive bladder cancer in 2022. He had neonadjuvant chemotherapy followed by a cystoprostectomy...
I'm really not doing well these last couple of days so emotional feel so alone and scared . I've got my petscan sat and nervous about this. And what's playing on my mind is how long they leaving me without treatment plan its been 8wks now since I was...
Hi everyone, just a quick enquiry. I'm having a TURBT tomorrow morning and as if nature planned it, I've starting my period today. Just wondering if it makes a difference to my appointment and if I should inform the hospital beforehand. Thanks cind...
Hello STC1 here. My radical cystectomy revealed most of my non curable cancer was as per subject header. I have just started GemCis chemo and had first session. Second one missed as I had been in A & E with a chest infection. Due to see consultant next...
Hello there and some personal experiences please. I have just had my first long session of chemotherapy and apart from being told to sit when peeing, clean up spillages and that bodily fluids are toxic not much else has sunk in to my brain overload. ...
Sorry think I’ve posted on the general forum (again) I was wondering if anyone else has been diagnosed with chronic kidney disease stage II?
I have been undergoing checks and treatment for the last 4 years. This has included flexible and rigid cystoscopies, a course of mitomycin followed by further checks. Then in March 2021 following a biopsy I was told that I now had Grade 3 cancer and removal...
Since my RC in October 2023 I've been using 'CeraPlus Moderna Flex' pouches. They do the job, but rattle like a crisp bag, & the seal doesn't take much to give out :-( So, I was wondering, have any of you experimented with different ones, & if so, what...
Hello STC1 here. I have never used an online forum before and am not too sure how to view replies to my introduction. I get an email to say someone has replied but do not know how to view it. How do I keep my page live so I can freshly post anything?...
Hello everyone, prostate biopsy done, 10 days to wait for the results… bag of nerves now… im not gonna try and look for answers.. im so drained…consultant showed me my MRI, ( I had no idea of what I was looking at) explained to me the different...
