Hello, I had my bladder removed 6 weeks ago and has been replaced by neobladder, I am now in the neobladder enlargement phase, I was told to use the flip flow tap to hold urine in the bladder for an hour, and then when I can cope with this, increase to...
When I have finished 9 weeks of bcg/mitomycin does anyone know how long after that I would be offered an appointment for general or local look into the bladder, one nurse said it could be 6 weeks?? Maybe it depends on the grade the cancer was etc as to...
Hi I had a radical cystectomy approximately 3 months ago with a neobladder reconstruction. Once my catheter was removed I was able to pee spontaneously. In the last week though. I don't seem to be able to do this? I've had to catheterise unfortunately...
Hi all i had my TURBT on the 2nd December went ok not as bad as what I thought, a 1-2 cm superficial tumour removed no chemo wash was given as was thought not necessary. However received results yesterday Ta G2, consultant said no further treatment...
Hi everyone I'm new here. Just looking for a bit of advice on how the chemotherapy schedule goes. My mum, after a year of being treated for 'interstitial cystitis' has just had a diagnosis of metastatic bladder cancer with some lung nodules. It's the...
I had my TURBT on 9th December so it feels like a long wait until today for the results of the biopsy, when I was discharged after an overnight stay they did say it looked like non invasive, so that was my hope, so to be told T2 was a bit of a blow, the...
Wishing everyone a Happy and Healthy New Year. Here's to 2023. Cheers.
Hi Folks. I’m posting this just on the off chance that others might have the same “unusual happenings” as I’ve experienced over the past 12 weeks. I have had initial cystoscopy, an initial TURBT a second TURBT and am now waiting for the results of that...
My husband wears a urestomy bag but finds the seat belt in the car cuts across it. This has caused the bag to bust on a few occasions leaving him.totally embarrassed with wet clothes. Has anyone else had this problem or any ideas how to solve it ?
Hi all hope everyone is ready for the Christmas festivities xx I have a quick question.. I have had 15 bcg treatments last one in June this year ..thankfully my cystoscopys have been clear but sometimes I get pain right at the bottom of my pelvis..I think...
