Bleeding has worsened.

Hi Jane, I don't have smart answers, just sending you a hug. Hope your GP is of some help - do ask him/her if they feel it's appropriate to offer some either calming meds or perhaps better, counselling or even 'social prescribing' to help you deal with the anxiety. Don't forget you can call the Macmillan helpiine 8-8 too.

Thinking of you, Denby

Hi Jane. I know how worrying it can be. I had a lot of bleeding prior to my first TURBT. I phoned the urology dept. and they gave me a date but it was still several weeks off. I was just advised to drink lots of water. Hopefully your GP may offer some advice. Best wishes.

Thank you Denby and Rily. 

It is just alarming and upsetting. I feel silly getting myself wound up about it. know you have all been through so much yourselves. 

Hopefully the GP will suggest something to help with my anxiety 

Much love and thanks

Jane xx

Big hugs Jane,I hope the dr can help.Love Jane x

Hi Jane. Why not try calling your urology departments surgery coordinator to try and find out what the TURBT date is?. I have done this and after a very pleasant chat, managed to get booked in and the date over the phone .. later confirmed by letter.

Tortoise has made a good suggestion and you could also ask to be notified if there are any cancellations.If you can get in at short notice on a cancellation then this will speed things up.I have done this in the past.X

Thank you Jane. She did try and reassure me. She said that tumours do tend to bleed sometimes. Exercise or housework like hoovering may set it off. She went off a urine sample in case of a UTI.

Love Jane xx

Thank you for the suggestion Tortoise. I will phone up and see ask to be called St dhort notice if there is a cancellation. 

Much love 

Jane xx

Sorry about my typo's

Hi Jane

It's tough, I do understand what you're going through, it feels like you're waiting an eternity for answers/appointments.

I started bleeding on the 27th May, usual GP dip tests done over a three weeks period and then referred for an ultrasound on my kidneys. That showed a suspected kidney stone. Jump forward to end of July and a Cystoscopy showed two tumours. I was in utter shock. August 2nd I had my first TURBT and chemotherapy, two days later a CT scan confirmed 7mm and 4mm kidney stones too. 

I built up a rapport with the Urologist PA by ringing quite regularly for updates. I would ring your Urologist and make them aware of your concerns. Please don't suffer in silence Jane. I hope the GP was able to help you today. Sending hugs from West Yorkshire x