I was sorry to hear your news Kiko, it must be a shock after you have coped so well with BCG. Hopefully your discussions with the consultant will give more information and possible alternatives to surgery. I send my best wishes, J.
Perhaps when you see them in person they might be an alternative, I really hope so, it's all very difficult isn't it, try stay calm, easier said than done x
Hi Kiko, it is so disappointing when there is a reoccurrence. I had 4 reoccurrences during my 27 dose BCG treatment but because the new tumours were lower grade than the original one, my team felt the treatment was working albeit it slowly So far since my final dose I have stayed NED but under no illusions that this might change. .You need to discuss thingst fully with your consultant. There are many folk on the site for whom bladder removal has worked positively to keep them clear and enabled them a healthy life .Sending you hugs at this tough time. H x
That's good, it is weird how we strangely cope and try to still do normal things when inside our lives are in turmoil but we try to be resilient and focus on what we need to do to carry on and get through, our minds are amazing aren't they. Glad you went out xx
Yes I totally agree we seem to deal with it ..sometimes for our loved ones ..what else can we do but carry on and put our trust in the hands of the doctor xx I too am under no illusions that I could be in your position in the future xx hope all works out for you xx keep being calm and positive this can only be good for you love Tina x
Hi Kiko,I hope you will be able to have a good talk with the consultant.It’s a good idea to write down any questions you may have.I took my sister in with me when we met the surgeon and she asked questions as well.It is a shock to be told you will need major surgery.For me it all happened very quickly so I didn’t really have time to process it all until I was recovering.I’m sure you will get plenty of advice and support on here.Love Jane xx
Sorry having been away if I am out of order here, but have you asked your consultant if it would be appropriate for you to try Mitomycin? When my OH had a recurrence after BCG they let him try this and it's worked so well , though ovbiously everyone's different, that he still has his bladder and all. He was originally PTa G3 and a jolly lot of them too.
