For the past 3 years I have been peeing way too much. About 8 times per night and 1 time per hour all day even when not drinking alot of water. I have a weak stream and it takes me about 21 seconds to pee it all out at that pace. If I drink the amount of water I'm supposed to drink per day I will pee about 2 to 3 times per hour. My symptoms started over 3 years ago but 11 months ago I had a cystoscopy which showed inflamation. I was scheduled for a a CT scan which came out clear and cytology which came out clear and a second cystoscopy which I didn't get a chance to go. Before I was able to get the scope I lost my insurance. In the past month I had a 24 hour urine collection that showed trace blood. (that was the first time ever showed trace blood in urine). I had my follow up cystoscopy finally today and it showed a small red mark that looked like a thin flat upside down redish triangle. I asked him if it could be interstitial cystitus and he said he doesn't think so because other wise It would be more spread out. I asked him if it could be cancer and he said it could be but he won't know anything until the biopsy.The dr scheduled me for a biopsy. I'm really scared. I'm male and I'm only 43. I have a 12 year old daughter that depends on me and her mom is mentally I'll so my daughter needs me here at least until she's old enough to have a good job and care for her self. I know I just need to wait till I get my biopsy to know for sure but I am stunned right now. What is the chance that a focused, flat red patch like that is not cancer? I'm feel like I'm floating in limbio right now. Is there hope that I don't have bladder cancer? And if it's not, what could cause a red spot like that in my bladder along with all of these symptoms? I already have health anxiety being a registered nurse so I'm having a hard time coping.
My daughter has already been high anxiety and depressed without even knowing any of my current medical fears. The new urologist said he thinks that my first urologist injured my bladder during my last cystiscopy. He said at my age 9 out of 10 times a red mark like that is either just inflamation or damage from a cystiscope. I didn't even consider that the first urologist could of hit the wall of my bladder during the first scope. During the procedure he said OK there's a real tight spot here then I felt pain after he got the scope all the way in. 3 days after I was peeing dark blood and multiple blood clots and my bladder was aching. All of which has never happened to me before the first scope. So I dont know for sure if that is what happened but I pray that was the reason for the mark on my bladder. Also my company canceled my health insurance 2 days ago because my hours dropped too low last month. Right before my biopsy that was scheduled for Tuesday. Now I have to wait for my new insurance to kick in Sept 1st. I pray that if it is something bad that waiting that much more time doesn't put me in an even worse boat
Hi Scorp111278, sorry to hear about you and your daughter. But do put it in perspective: now you have a 90% explanation for an entirely innocent reason for the red patch. I really don't personally think the wait till September is going to alter things significantly
Over here we have a type of fruit squash drink called Robinson's Lemon Barley Water. This was recommended by my old GP to flush through a touch of cystitis. it was so successful i didn't have to get antibiotics. Many people find it helpful to drink plenty correctly diluted. If you do this to keep your urine dilute, you will avoid the irritation to the bladder that can easily be caused by concentrated urine.
Do ask your daughter's school for the school counsellor to meet with her and provide support. What with her Mum and you the lass has a lot to deal with at a sensitive age.
Denby
This Wednesday is finally when the new urologist will do my third cystoscopy. My new insurance won't kick in till Sept 1st so I have to pay around $1700 for Wed out of pocket. I pray that if it is something bad that they won't make me wait a long time to get it treated. Also since my last post I started feeling like I'm losing my voice. No amount of tea is helping it. I get a feeling that it's because of acid reflux but it is bothering me that it's happening at tge same time as my bladder concerns. I wonder how often bladder C goes to the throat. I wish I could just get rid of all this fear. Thank all of you so much for being here for me.
Hi Scorp111278, I think we all get anxious immediately before a cystoscopy, I certainly do. But of course it is a good thing to get checked and if necessary to get treatment, the sooner the better. As you have experienced until we get a definitive all clear we can imagine all sorts of possible horrors! I’m not medically qualified but I’ve never heard of any link between bladder cancer and the throat. Maybe try to distract yourself for the next few days, spend some quality time with your daughter and treat yourself to whatever makes you smile? In my case I like to walk my dog in the woods or dive into some mindless tv, and definitely eat cake! Will keep my fingers crossed for you on Wednesday, sending best wishes. H x
Good thank you. Mr D is always much better when doing practical things he enjoys, and he's busy painting shed'n'fence treatment on a wooden compost container he's built for the garden.
I do think re the voice, sheer anxiety can cause tension in the throat that affects voice. If I get clogged with catarrh which I do sometimes, I quit the milk in tea and put lemon instead, that might help. "If in doubt, check it out" as soon as your new insurance kicks in.
Best wishes,
Denby
My urine cytology report came in online. I'm too scared to look at it. My biopsy is tomorrow. I'm so scared I'm shivering.
Hi Scorp, So sorry you are feeling so frightened . I know exactly where you are at emotionally and I dare say most on this forum do as well. I had my RC almost 5 years ago now and two years ago I was seeing visible blood specks in my urine. Pushed for an early CT scan and when the results came to me via Mychart, I just stared at my phone for a good 1/2 hr until I mustered the courage to open it and see . It was negative and I was over the moon. Now this was in Canada , I’m not sure how it works where you are , but here I don’t think they post results until the attending physician has a look at them , and the docs usually will give bad news in person. I know that many on here have said to stay away from the internet and in some ways I agree , however I found that being proactive educating myself was the most settling thing I could do. For me the fear of the unknown was so much worse. Only the scholarly studies from the respected sources ( Harvard Med. , Mayo Clinic, Wiley Library ) will give you the straight goods. The cart is, however , before the horse in your case. You will have to endure this uncomfortable wait before you are properly diagnosed. You will know so much more after tomorrow. Stay brave. Orillia.
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