Flat red mark on bladder

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For the past 3 years I have been peeing way too much. About 8 times per night and 1 time per hour all day even when not drinking alot of water. I have a weak stream and it takes me about 21 seconds to pee it all out at that pace. If I drink the amount of water I'm supposed to drink per day I will pee about 2 to 3 times per hour. My symptoms started over 3 years ago but 11 months ago I had a cystoscopy which showed inflamation. I was scheduled for a a CT scan which came out clear and cytology which came out clear and a second cystoscopy which I didn't get a chance to go. Before I was able to get the scope I lost my insurance. In the past month I had a 24 hour urine collection that showed trace blood. (that was the first time ever showed trace blood in urine). I had my follow up cystoscopy finally today and it showed a small red mark that looked like a thin flat upside down redish triangle. I asked him if it could be interstitial cystitus and he said he doesn't think so because other wise It would be more spread out. I asked him if it could be cancer and he said it could be but he won't know anything until the biopsy.The dr scheduled me for a biopsy. I'm really scared. I'm male and I'm only 43. I have a 12 year old daughter that depends on me and her mom is mentally I'll so my daughter needs me here at least until she's old enough to have a good job and care for her self. I know I just need to wait till I get my biopsy to know for sure but I am stunned right now. What is the chance that a focused, flat red patch like that is not cancer? I'm feel like I'm floating in limbio right now. Is there hope that I don't have bladder cancer? And if it's not, what could cause a red spot like that in my bladder along with all of these symptoms? I already have health anxiety being a registered nurse so I'm having a hard time coping. 

  • I'm trying to stay brave but I have so much fear I'm honestly not sure if I will be able to drive my self to my appointment. Got very little sleep last night. Never checked my online results for my urine cytology. I don't want to know honestly. How do I calm my fear? How do I cope if it's bad news? 

  • Dear Scorp, maybe it is time to involve a friend or neighbour. Ask them if they can drive you to your appointment. Even if you hardly know them.

    It's really worth looking up some breathing exercises. They really do alter your body chemistry to help reduce the anxiety.

    Best wishes, 

    Denby

  • I'm here at my appointment. So scared

  • Hi Scorp, let us know how it goes. As other have pointed out, once you have more info you will have more clue about what treatments could be needed. Then whoever here has had those can let you know approx what to expect.. 

    Denby

  • They rescheduled the cysto for after my insurance hits Sept 1st. They said if they did the flexible in the office today I would have to pay over 1k dollars and if they found something suspicious they would schedule me for a rigid cystoscopy anyway. He said it would be kinda redundant. So possibly a few more weeks wait. The urine cytology was negative but he said that doesn't mean anything. If I do have bc and my urinary symptoms started 3 years ago does that mean that is how long it could have been there? Would untreated bc have progressed alot in 3 year time?

  • Hi Scorp, sounds like you have very sensible and not money-grabbing medics. No point in paying when such a short wait means your insurance will cover it. As far as I understand it, waiting a month for next steps is very unlikely to make things significantly worse. My bc was undiagnosed for over 3 years but it hadn't become invasive and I'm still here, healthy and happy 5 years later. Also I was told high grade cancers generally show up in urine cytology, but sometimes low grade ones don't. So I think you can hang on to some positive hope. I totally understand how scary things feel for you at this initial stage but in my experience sliding into a panic made me feel worse and achieved nothing.xx  I've found taking things one day at a time reduces my anxiety. Sending you best wishes H

  • Thank you for your kind words

  • Hi Scorp. Just to echo what H. says. A negative urine cytology is a good sign. It is sensible to wait until your insurance kicks in . Several extra weeks should not make a great deal of difference, I hope al goes well. Best wishes.

    Best wishes to All,   rily.

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  • I've been trying not to ask this but I can't get it out of my mind. How often on a person's initial diagnosis are they found to have what is considered incurable Bc? My luts symptoms started about 3 years ago. No visible blood in urine only trace amounts found for the first time 2 months ago. 

  • Hi Scorp. I have been a member of this group for many years and the cases of incurable are extremely rare. Try not to think this way. BC can be treated successfully. Best wishes.

    Best wishes to All,   rily.

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