Not good.

Hi foxbrush. Must be really disappointing when this happens. The good thing is we are monitored regularly and these things are picked up early. The new kit sounds promising. I wonder if it helps improve TURBTs as they will get a much clearer image and see what they are dealing with better. Best wishes.

foxbrush,

I always imagined recurrence was something that you get used to, but you don't as you think that it's come back to get you this time.  We wouldn't be human if we didn't feel this way, of course we have acts of bravado from time to time but we all have the fear.  We're all here for you mate x

Thanks Rily, lets hope  the kit is better for them, I could certainly see all the little veins etc.

Thanks  BLANKET, such a comfort to come on here, especially when you live alone.

What rotten news for you. Presumably another TURBT looms? If it's any consolation, my brother had several recurrences over a few years but was eventually deemed clear long enough to be discharged. Hope grade still low & just carry on monitoring.

Hello Foxbrush

I also had a recurrence Six months after my chemo radiotherapy treatment finished albeit the tumour was deemed superficial and following removal biopsy revealed low grade status. This was followed by rigid cystoscopy several weeks ago with a full and deep bladder examination. Consultant said all was clear apart from red scarring in two places due to radiotherapy treatment. I have a flexible cystoscopy due in February 2020. It is worrying when you get a recurrence but hopefully it is low grade and the tumour can be removed and the next flexi clear!

Thinking of you

Garviv

Hi Teaswill  thank you and yes looking at early New Year for TURBT. 

Thanks Garviv . You have been a bit unlucky  but sounds promising now for you. Besy wishes.

Hi foxbrush,

Sorry to hear about your reoccurrence. I’ve had TURBTs when chemo wash has been given and still had reoccurrences and also without the chemo wash and had reoccurrences.

Not sure if it’s down to the size of the tumour or the surgeon. I did ask once why I wasn’t given the mitomycin  and the answer was’ well it didn’t work last time’!

 Stay positive and hope you get an early appointment for your TURBT.

Best wishes Luce 

Sorry to hear about that foxbrush. I've been there, so demoralising, and almost worse when you can see the tumour (or in my case multiple tumours) with your own eyes. But as you say the NHS is on it. 30 days later another TURBT and all removed again. I've never had a chemo wash but my recurrences have been during a course of BCG. They just whip them out and carry on with the doses. I hope you can try to relax over Christmas and not worry too much. I've had 2 recurrences and I'm still trucking along. Sending love H x