After finding a cancerous tumour via cystoscopy on the 30th November and a CT scan 17th December I eventually contacted GP because I’d heard nothing regarding results, the waiting was really getting to me!! She was able to tell me that scan showed nothing else of concern but no more real detail. I then contacted the hospital to chase up when TURBT op was going to happen only to be told that all operations were cancelled due to COVID! Urology department also confirmed this is the case. Gutted!! I have now decided to have it done privately but it still means a wait of about 6 weeks. Hopefully I can keep myself from stressing out too much! If anyone else is experiencing the knock on effects of the pandemic, I feel for you, it’s blooming horrible!! My heart goes out to all those who are suffering from COVID too, what a world we find ourselves in!
I think I've been walking about too much today ...I shall rest up more I'm so used to being up and about but I've got to realise that even though there is nothing visible to see my inside has had a tauma xx take care hope you are feeling OK I'll keep in touch
love Tina
Hi I was diagnosed with noninvasive low grade cancer and had TURBT a year ago and waiting for follow up. I know how stressful it can be waiting. I can sleep . Luckily I got an appt today for 2 weeks time for a phone consult. This group is excellent for support and advice . Hopefully the weeks will pass quickly and it will be all over soon xxx
Hope all goes well for you take care xx take one day at a time nothing else we can do xx
Feeling stronger every day. Walked the dog today as normal, so glad to get back to routine! I’ve no idea how long I will need to wait for results from histology - have you heard anything Hou?
Also thanks to you Saskia1 - I’m finding support from the group very useful. Xx
So glad you're feeling stronger i feel much better too I've been to lidl to get some shopping I think I would be out and about bit more if we weren't in lockdown .. they told me it would be about 3weeks till I heard anything about results ... I'll be glad to know .. I'm still drinking lots
water
and still have some feelings of urgency but on the whole I'm good
take care and keep smiling
xx love Tina
How are you feeling hope all OK
i am OK still drinking lots of water and going to pee lots still a bit sensitive at end of peeing but I've read that this can go on for a month ..xx I had a phone call on Friday to see consultant o
Tuesday morning I asked the secretary is this normal procedure she said yes
take care ..I'll keep you up to date x
I’m doing ok! If I do too much I get a few ‘twinges’ so know it’s then time to slow down a bit. I too still have the sensitivity when I finish peeing but definitely getting better. Hope all goes ok on Tuesday morning. I still haven’t heard anything
Take care, thinking of you. Jan xx
It's funny but I want to know results tomorrow but I seem to be very nervous about it xx all things are going around in my head..are they calling me quite soon because something is really bad ..I'veeen quite positive but find I'm worrying and thinking the worse today ...I suppose this will be a normal process now have tests wait for results id better get used to it
glad to hear you're on the mend take it easy ..I'll keep in touch love Tina xx
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