Waiting!

FormerMember
FormerMember
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After finding a cancerous tumour via cystoscopy on the 30th November and a CT scan 17th December I eventually contacted GP because I’d heard nothing regarding results, the waiting was really getting to me!! She was able to tell me that scan showed nothing else of concern but no more real detail. I then contacted the hospital to chase up when TURBT op was going to happen only to be told that all operations were cancelled due to COVID! Urology department also confirmed this is the case. Gutted!! I have now decided to have it done privately but it still means a wait of about 6 weeks.  Hopefully I can keep myself from stressing out too much! If anyone else is experiencing the knock on effects of the pandemic, I feel for you, it’s blooming horrible!! My heart goes out to all those who are suffering from COVID too, what a world we find ourselves in!

  • I’m much better since my bladder was removed.Follow rily’s advice and you should recover soon.Love Jane xx

  • Thanks xx I've been home for 4 hours and already feeling bit better Relieved I'll take your advice ..I've been told to try lemon barley squash or is water better Thinking xx

  • Hi Hou, I was the person who originally mentioned the Robinson's Lemon Barley Water (NB not the fruit'n'barley stuff, it is not the same).

    The reason is that many years ago I went to my old GP with the start of cystitis -I went early because I had had a miserable time with it previously and recognised it straight away second time round. He confirmed that is what I had, but said "Go out of here and buy a bottle of RLBW, drink the lot properly diluted in the next 24 hours and I think you will not need the antibiotics. If you do come back and I will prescribe them then." He was right, I did as I was told and did not need the antibiotics. It's something to do with the pH [acid/alkali balance] and barley content, which discourages bugs from taking hold. Therefore it is an even better flush than just plain water. It is also much easier to drink decent volumes of, because the moderate tanginess goes down much easier than plain water.

    Hope that answers your question: it is GP advice originally, Denby

  • Thank you I've bought a bottle and starting drinking ..thanks for the info take care xx

  • FormerMember
    FormerMember in reply to Hou

    I have just returned home after my TURBT Smiley  All seems to have gone well and didn’t need anything in the way of treatment.  The surgeon was very positive so fingers crossed Fingers crossed tone1

    Glad you’re ok Hou, I was thinking of you xx

  • That’s good to hear Lingdilong.Take care love Jane xx

  • Great to hear it's so nice to here all over Blush I'm bit sore on side of my body but I'm ok Ok hand I had chemo put in bladder and left for hour ... I go back for results in 3 weeks Fingers crossedtake it easy now  love Tina xx

  • Hi . Good to know you got through it ok. Just a reminder to you guys about something they don't always tell you. At about the 10-14 day mark, you may notice some signs of blood in your wee and also tiny blood clots passing. As long as not excessive, this is normal. The scab on the wound starts breaking away as part of the natural healing process. I only mention this as if you are not expecting it, it can give you a bit of a shock. Plenty of water to keep things flushed out. Best wishes.

    Best wishes to All,   rily.

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  • Ive been having blood in my pee since I had the turbt ..this is normal  is it?? I'm  peeing okay but I can plainly see blood there ...I will take note of your advice thank you Blush 

  • FormerMember
    FormerMember in reply to Hou

    They told me to expect a bit of blood.  I guess although you can’t see it, there is a wound inside! Onwards and upwards Muscle tone1 All the best Tina.  Jan. xx