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Has anybody successfully obtained a Blue Badge for the sudden onset of fatigue and leg weakness following chemotherapy for cholangiocarcinoma? I was diagnosed in February with Stage 4 which is incurable but manageable apparently. Not seen a MacMillan...
My husband has recently been diagnosed with bile duct cancer and is scheduled for a Whipple in the new year. He’s also got a bowel cancer which will be operated on at the same time. I’m just sat here now crying, trying to get my head around how life changing...
Please does anybody have an experience of this treatment, I have been battling stage 4 cancer for two years now, but recent scan results have shown my Durvolumab immunotherapy has stopped working and my disease has progressed. My oncologist has suggested...
Hi im awating results for bile duct cancer im so scared my heads a mess right now feel like im having nervous breakdown . My family are so supportive but i feel so alone . I hate seeing them in pain too. Im 58 years old dont have friends that have stayed...
Hi, I’m here as my mum has cholangiocarcinoma that has spread to her liver, lymph nodes and lungs. She wasn’t suitable for treatment and has outlived her initial prognosis. She is now very unwell, at home, being cared for primarily by me (her daughter...
Hi - has anyone any experience of actually having this done? I have stage 4 Bile Duct Cancer that has metastasised to the peritoneum and I am looking to get this procedure done.
My husband has just been diagnosed with bile duct cancer. Metastasis to the liver, femur, hips, skull. Not been given a prognosis yet, but sounds grim. We saw a private HPB consultant 3,weeks back and he thought he looked too well to have HPB cancer which...
I was diagnosed with extra hepatic bile duct cancer end of September 2025. It was discovered because I had become very jaundiced and scans showed the bile duct was blocked. Initially they were hopeful they could operate and remove the tumour along with...
Hello, I was diagnosed with bile duct in jan 2024 was incredibly lucky enough to be able to have it surgically removed in may 2024 followed by 6 months of capecitabine. All was going great until I got the results of my recent scan which shows metastasis...
Is anybody else on Ivosidenib/tibsovo if so how you getting on re side effects etc
