Cytoreductive surgery with HIPEC

Hi Captain

I am sorry that you post has not yet had a reply but sometimes it can just take a little longer for someone who has undergone the same treatment to see it and respond. 

I am sorry to hear of your bile duct cancer. My own cancer was different to yours so I hope you do not mind me replying but by doing so it will bump your post. 

In the meantime I have found some information about HIPEC that may be of help.

Hyperthermic Intraperitoneal Chemotherapy (HIPEC) : University College London Hospitals NHS Foundation Trust

While you are waiting for a reply, do give the Support Line a call if you feel talking things through would help. It is there from 8am-8pm everyday. 

Jane

Hi CaptainHfdfd45 ,

 I haven't yet, but I'm having one late Jan/early Feb.  I saw the surgeon yesterday and for ladies in particular it sounds like an absolutely enormous operation.

 I'll be interested to know your experience if it's before mine.  I will be keeping my profile updated with my experiences to try to help others as I know there isn't much on here about it.

Best wishes

CerysM

Hi CerysM

I just had PET scan and staging laparoscopy to check I was ok for the surgery and today the surgeon said I was not suitable as there was too many cancer spots for the surgery to be beneficial. So it’s back to the chemo and maybe look again in 6 months. 
But as a man - it’s not done on the NHS so as a self funding private patient this will cost me circa £50k. 
So much for equality !

Cancer - the gift that keeps on giving. 

To be fair I'm lucky as they've started doing in Cardiff in the last few years.  I don't think I'd be as lucky if they didn't do it fairly locally (an hour away) from me.

Good luck with your journey.  Cancer is indeed the gift the keeps on giving - I wish it wouldn't :-)

Hi there,

8 weeks ago today I had cytoreduction surgery with Hipec, mine was from bowel cancer that had spread to the peritoneal 

it is indeed a big surgery but so grateful that I was accepted for this treatment, mine was at Christie’s in Manchester, what an amazing team

my recovery, touch wood, has been amazing considering, the op itself went well, just under 10 hours, the pain management was amazing, out of bed the next day and the histology results are clear  

I don’t know if you have had this yet but the best of luck to you

you will be so well looked after

Hello Djay

Hope your recovery continues to go well. 
Can I ask if you are female and if this was an NHS funded procedure?

I am trying to see if any men have had this surgery on the NHS as I am told it can only be done privately in my case.

best wishes 

Pete 

Hi Pete,

female and yes I was lucky enough to have it done on the NHS

i believe there are only 2 hospitals in the uk that do this procedure, Manchester and basingstoke

wishing you all the very best 

best wishes 

Donna 

Thanks Donna. Is appreciate your candor. 
The surgery is also done at the private Harborne Hodpitsl in Birmingham - but for me it’s not practical at the moment as the CT scans were understaged and my PET scan /Lapsroscopy shows more disease than expected. 
So back on the chemo ️

Great to hear, mine is next month - I'm currently halfway between 'lets get it out now' and absolutely terrified.  

Hi CerysM

i was also terrified and I think it’s better to be a bit scared than not, I googled too much which never helps my husband kept shouting at me and told me to just listen to the team, a lot of google of course is outdated 

on the day of surgery sat in the waiting room I felt a calmness , I knew I was in the best hands, I had no more questions and there was no turning back because without this opportunity I wouldn’t be here for much longer

coming round in icu, after 10 hours, I was completely pain free, had an epidural in for 5 days which was a godsend, little button to press whenever I needed pain relief. They follow this ERAS protocol which really helps, out of bed the next day, I know every case will be different but my experience has been very positive 

i truly wish you all the best and if you need to know  anything else please ask

best wishes

donna