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I was diagnosed with extra hepatic bile duct cancer end of September 2025. It was discovered because I had become very jaundiced and scans showed the bile duct was blocked. Initially they were hopeful they could operate and remove the tumour along with...
Hello, I was diagnosed with bile duct in jan 2024 was incredibly lucky enough to be able to have it surgically removed in may 2024 followed by 6 months of capecitabine. All was going great until I got the results of my recent scan which shows metastasis...
Is anybody else on Ivosidenib/tibsovo if so how you getting on re side effects etc
Hi, my Husband has been living with Stage 4 Cholangiocarinoma since 2018 when Lung mets were discovered a year on from a Liver resection. He is currently waiting to start 8th line treatment of FOLFOX. Trials for targeted treatment as well as good old...
My partner has been diagnosed with bile duct cancer
As a prolific searcher of these internet forums when my mum was first diagnosed, I realise there is very little available about bile duct cancer on the internet, so thought I would share my mum's story to date. It's a bit of a long one, but she's had...
Hi everyone just wanted to say hello. I have been diagnosed with bice duct cancer and am beginning chemo on Wednesday alongside immunotherapy. Feeling a bit nervous but glad to have been directed to this group thanks Mary
I have bio duct cancer and secondary liver cancer which i found out in september this year.I did have one session of imunitherapy which i reacted badly to ,from the waist down my body was swollen i could hardly lift my legs and through the amount of fluids...
They resolved the situation by inserting a new bile tube and that’s cured that issue as I was so not well and skin tone being yellow jaundiced too now I have to contend with the cancer possibly being removed or going down chemotherapy route which does...
Hello everyone, I've recently been diagnosed with Bile Duct Cancer. The main symptom I had was uncontrollable itching. Has anyone else experienced this and how have you managed to relieve it? The day time is just about bearable but at night it becomes...
