Next steps after 6 months chemo - August 2026 onwards

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Hello everyone,

Update from the July 30th meeting. The oncologist said I've had a very positive response to the 6 months chemo (Carboplatin and Paclitaxel) and confirmed that the primary anal tumour has shrunk to 2.7cm with some residual disease there. She is confident that it will all be zapped, including the enlarged inguinal node which had progressed from 0.8cm to 1.5cm since the March scan. I start the 28 days chemoradiation on August 24th.

She also confirmed that the 28 days is part of first-line treatment and she's going for the 'radical' approach, ie: disease elimination versus palliative/symptom control. 

Before then, I'm travelling down to Guildford for the three SABR radiotherapy treatments to the single liver lesion, starting August 14th, then 17th and 19th. I had the planning MRI and CT scans at the end of the July. The MRI-guided treatment scanner is a splendid machine to behold, complete with smiley emojis telling you when to hold your breath and breathe again. Each treatment session will last about an hour.

The SABR oncologist said there is a 90% likelihood of tumour eradication. The main side effects of the treatment would be fatigue, nausea and upset stomach as the lesion is close to the stomach. It can take 6 months to see the results. Apparently they can treat up to 5 liver metastases in this way.

Still keeping up the A.R.S.E. approach and hope you're all doing as well as you can be. I'll update again soon.

Kathy

  • Kathy that's fantastic news and I bet you did a small dance when you heard those words 'disease elimination'.

    Keep A.R.S.E ING and I have everything crossed for excellent results from both treatments.

    Ally xx

  • Hello  

    I have just replied on another post about the importance of having a positive, upbeat oncologist and I am so happy that yours has all guns blazing!

    I hope very much that the SABR treatment does the whole business of eradication. please keep us updated on your progress.

    Big hug

    Irene xx

  • This is great news  !  I love that the SABR oncologist has given such high odds that it will eradicate the liver lesion, these treatments all come with side effects but if that means you’re disease free you’ll deal with it like a champ I’m sure.

    Wishing you the very best of luck for tomorrow, the 17th & the 19th & for your chemoradiotherapy on the 24th, August is a mammoth month for you, you’ll be in my thoughts. 

    Nicola 

  • Thank you everyone for your very kind and supportive comments. Much appreciated!

    I finished the three SABR treatments to the single liver spot last Wednesday (19th). So far, so good and I didn't experience any side effects at all, thankfully. The treatment itself was painless, but a lot of breath holding and took some practice! It wasn't easy being in the MRI scanner for up to an hour or so each time. After the last session, my left arm was aching a lot due to the confined space but is a lot better now.

    I even managed more than 10,000 steps the day after the first treatment, exploring Guildford despite the heat. I was very impressed with both the treatment centre (all very new and spotless!), the hotel and the town. I'm waiting to hear for a follow-up appointment with the liver oncologist - should be in a few weeks time.

    I guess it will be a while before I know if the liver lesion has fully disappeared and I don't have any follow-up scans booked yet. I suspect the first will be in around three months time. I don't see my main oncologist again until November.

    I've now started the next steps in the 'A.R.S.E.' journey...the 28 days chemoradiation! It's a long old slog, isn't it! Day 1 on Monday started with the purple Mitomycin infusion at Worcester. It's Day 3 today, I'm on 3,000mg of Capecitabine tablets a day (six 500mg tablets - has anyone else had this level of dosage?) and moisturising furiously.

    So, here goes. I'll keep you updated. Hope you're all doing as well as can be.

    Kathy