Hi all
I was diagnosed May last year and had 28 days chemo/radiotherapy to be told in December that the treatment couldn't have gone any better and I have the all clear. Life was starting to get back to normal. Long story short after persistent infections and feeling really unwell throughout April and May I was diagnosed in June with stage 4 cancer. It has spread to my liver. Im devastated. It seems really unfair, scary and surreal tbh. Ive been told if I didn't start treatment immediately I had 3 months with treatment maybe 2 years. I started treatment the next week and have 6 months of chemotherapy. Im having a 4 week cycle of chemo on week1, 2 and 3 and then rest week in week 4. I've completed my first cycle and week 1 was a bit tough for a couple of days but I actually have been ok. Im fairly fit still out walking daily, a vegetarian, so a pretty clean diet, and feel better than I was doing in May.
Im watching salt intake, i don't drink alcohol and have cit out sugar.
Im under Addenbrooke's in Cambridge but put in for a referral for a second opinion at The Royal Marsden which Im waiting for. I feel well at the moment and want this to last as long as possible Im determined to be around for my husband and our 2 boys..At the moment Im only being offered palliative chemo. Has anyone been nor in this position that can offer any advice or hope? Any other treatment plans that is extending past 2 years survival. I have heard about treatment in Germany and apparently they are years ahead of us for treatment?
I've been told as so many tumors in the liver surgery isn't an option and haven't been offered immunotherapy
Any tips/advice/hope would be appreciated
Thanks
X
